FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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Posts Tagged ‘genetic testing’

February 1, 2012

We Need Your Help Now! An urgent update on incredibly important research for women at high risk of ovarian cancer

If you were one of the high-risk women who participated in the large GOG-199 research study, thank you for helping advance critical research that will lead to better health outcomes for our community. Your continued participation in a related study, which is easy and involves only a simple annual questionnaire, will help researchers continue this … + read more

January 18, 2012

Thirteen Ways FORCE will Serve Our Community in 2012

On New Year’s Day we celebrated FORCE’s 13th birthday! Over the course of this year, we will highlight the significance of this milestone with blogs that emphasize the theme of “13.” As my first blog of the new year, I am excited to share 13 things that FORCE will do to serve the hereditary cancer … + read more

December 31, 2011

Happy New Year and Happy Birthday to FORCE

Tonight at just after midnight, FORCE and this community will celebrate our 13th birthday. It is hard to believe that it has been thirteen years since I founded FORCE, on New Years. As the new year rang in, I was sitting at my computer, fresh out of treatment and prophylactic surgery, posting on a brand-new … + read more

December 24, 2011

Holiday Guest Blog: Joanna Rudnick

FORCE member Joanna Rudnick, producer of the documentary In the Family  wrote the following special holiday blog. Of Holiday Miracles and Possibilities by Joanna Rudnick This time of year is all about the great miracles and the infinite possibilities. For most of us, miracle and possibility are the last words that come to mind when we … + read more

December 13, 2011

Best Gifts of the Season

The holidays are a very sentimental time for me; there are a lot of reminders of my hereditary cancer journey. The season is about so much more than gift-giving. Nevertheless, I thought that it was appropriate and timely to share my all-time best gifts in my blog. The most romantic gift I ever received In late … + read more

October 6, 2011

HBOC Week was a Success: Let’s Sustain Awareness All Year Long

The squeaky wheel gets the grease. We have heard that saying so many times it has probably lost its true meaning. “Breast cancer awareness” and “ovarian cancer awareness” are terms that also can lose meaning over time. What does awareness mean? Does it really help in any way? Can awareness change behaviors? Can it save … + read more

August 22, 2011

FORCE is Preparing for 2011 National Hereditary Breast and Ovarian Cancer Week and National Previvor Day … and we hope you are too!

HBOC Week is our opportunity to shine the light on hereditary breast and ovarian cancer, impart knowledge, and save lives. Let’s join together to make a difference! On September 15, 2010, history was made with the unanimous passage of H Res 1522, the Congressional resolution declaring the first-ever National Hereditary Breast and Ovarian Cancer (HBOC) Week and … + read more

August 16, 2011

Spirit of Empowerment: A family gives back

At our conference in June, we continued a new tradition by presenting our second Spirit of Empowerment Awards. They recognize the contributions of individuals and organizations that help FORCE support the hereditary breast and ovarian cancer community and allow us to shine the light on individuals and organizations who are making a significant difference for the almost one million people … + read more

July 20, 2011

The critical need for ovarian cancer prevention research

In 2008, FORCE surveyed our community to establish hereditary cancer research priorities. One of the top four priorities was the development of new cancer prevention options. An important step in designing research is determining whether there is a need and whether or not the target population would enroll in the study.  We conducted a survey … + read more

July 12, 2011

Prioritizing research for metastatic hereditary cancer

There is a need for more treatment options for hereditary cancer, and the need is dire for women with metastatic hereditary breast cancer who make up a small subset of the larger breast cancer population. To better understand advanced hereditary breast cancer and to advocate for more research and better treatment options, FORCE conducted a … + read more

June 30, 2011

Why we need a hereditary cancer research fund

One of my favorite moments of the FORCE conference was having the honor to announce the FORCE Hereditary Cancer Research Fund. Below are some highlights from my presentations that mention this new and important FORCE initiative.   “Awareness and advocacy lay the groundwork for building our community and making sure that the needs of our group … + read more

April 25, 2011

A Prescription for Health: Taking Time for Exercise

At age 48, more than a decade after being treated for cancer and enduring chemotherapy and early menopause, I’m amazed to find myself in the best shape in my life. So many of us go to exhaustive lengths to explore and pursue options for cancer risk-management—we make multiple doctor appointments, undergo intense screening, and sometimes … + read more

April 16, 2011

Step-by-step: My kick-off talk for the Relay-for-Life

It’s an honor to be here today.  I was a practicing veterinarian in South Florida when I was diagnosed with breast cancer at age 33. At a time when I should have been enjoying my veterinary career, my husband, and my young toddler, I was diagnosed out of the blue. I was told it was … + read more

September 30, 2010

What a difference a decade makes

by Sue Friedman I watched CSPAN with a sense of pride and awe as the House of Representatives voted on and passed HR 1522, designating National HBOC Week and Previvor Day. It is a day that has been 11 years in the making. It has been a long, exciting, sometimes frustrating and (now) gratifying journey … + read more

December 3, 2008

Comments Submitted to the Secretary’s Advisory Committee on Genetics Health and Society

Yesterday I had the honor of being asked to submit public commentary to the Secretary’s Advisory Committee on Genetics Health and Society.  This committee reports to the Secretary of Health and tackles the emerging and challenging issues being faced as genetic research expands at a rapid pace.  The committee seemed very interested in my statement and members … + read more

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