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Hereditary Cancer
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Hereditary Cancer & Genetic Testing
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Hereditary Cancers
Genetic Testing
Hereditary Cancers
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Hereditary Cancer Basics
Learn how gene mutations can lead to cancer, what types of cancer may be hereditary and how parents can pass inherited mutations to their children.
Cancer Risks by Gene
Read about different genes that are linked to hereditary cancer and the risks associated with inherited mutations in these genes.
Genetic Testing
Go back to previous menu.
How Do I Get Genetic Testing?
Learn more about genetic testing and how to take the next steps to get tested.
After Testing Now What
Learn how to make medical decisions and assemble your health care team once you receive your genetic test results.
Sharing Results with Family
Explore tips to help you communicate your family medical history or genetic test results with relatives.
Risk Management & Treatment
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Risk Management & Treatment by Mutation & Cancer
Reconstruction or Going Flat
Menopause, Well-Being & Survivorship
Fertility & Family Planning
Risk Management & Treatment by Mutation & Cancer
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Risk Management & Treatment by Mutation
Review updated information on cancer risks and national guidelines on screening, prevention and treatment options listed by gene.
Risk Management & Treatment by Cancer
Review updated information on screening, prevention and treatment options listed by cancer site.
Risk Management & Treatment by Treatment Type
Review information on prevention and treatment options listed by treatment type
Risk Management for Transgender People
Review guidelines on prevention and screening options for transgender people with inherited mutations.
Reconstruction or Going Flat
Go back to previous menu.
Types of Reconstruction
Understand the types of breast reconstruction.
Going Flat
Learn more about the option of going flat.
Preparation and Recovery
Prepare for surgery and recovery.
Photo and Video Gallery
See images & videos of individuals after mastectomy and reconstruction.
Menopause, Well-Being & Survivorship
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Menopause
Learn about ways to manage the effects of menopause with and without hormones.
Well-Being & Survivorship
Learn how to manage the short- and long-term effects of cancer risk, diagnosis, prevention and treatment.
Research
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Enroll in Research
Research Advocacy
Enroll in Research
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Search and Enroll
Ready to enroll? Our tools will help match you to hereditary cancer detection, prevention and treatment studies.
How to Find Studies
These tips and resources will help you locate clinical trials and studies enrolling people like you.
Why Enroll in Research?
Learn why you should consider enrolling in a research study and your rights and protections as a research participant.
Research Advocacy
Go back to previous menu.
Help Shape Research
FORCE trains patients with no science background to use their personal experiences to help guide hereditary cancer research.
Resources for Researchers
These tips and resources were developed by research advocates to help investigators work with patient stakeholders to strengthen and accelerate their research.
Support & Public Policy
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Support
Paying for Care
Laws & Protections
Public Policy
Support
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Personalized Guidance
Match with a Peer Navigator volunteer with similar experience as you for confidential 1:1 phone/email support and a free resource guide.
Support Meetings & Partner Events
Review our calendar to connect with others and obtain support and vital resources.
Private Facebook Group
Connect with others over social media who are affected by hereditary cancer.
Message Boards
Register for our forum where you can discuss topics online 24/7 with other people who face similar hereditary cancer concerns.
Helpline
Ask questions and receive nonjudgmental support and resources in English and Spanish. A Genetic Counselor helpline is also available.
Decision Checklists and Tip Sheets
Use our interactive tool to create personalized lists of questions to ask your doctors and tips to prepare for surgeries and procedures.
Find Healthcare Providers
Locate services or medical experts knowledgeable in cancer genetics, including genetic counselors, oncologists, surgeons, fertility experts and more.
Volunteer
Get involved by supporting others, advocating for laws and research that benefit our community and raising awareness of hereditary cancer on social media.
Paying for Care
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Insurance & Reimbursement
Learn about health insurance coverage and reimbursement for healthcare services. Get tips on insurance appeals and customizable sample appeal letters.
Financial Assistance
Find national resources and grant programs to help offset costs for genetic services, cancer screenings, surgeries, treatments and more.
Laws & Protections
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Federal Laws & Protections
Learn about laws and legal protections affecting the hereditary cancer community—ACA, GINA, WHRCA—and how to file a grievance or complaint.
State Laws
Get information on state laws that guide coverage and costs of cancer screenings and diagnostic imaging needed by those at risk of hereditary cancers.
Public Policy
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Federal Policy Initiatives
Read about federal laws and legal protections affecting the hereditary cancer community and how to file a grievance or complaint.
State Policy Initiatives
Read about our engagement in key state legislative efforts, ensuring that the voice of the high-risk, hereditary cancer community is represented.
Get Involved
You can make a difference! Learn how you can help FORCE advocate for the hereditary cancer community at the state and federal levels.
Resources
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Educational Resources
Community Resources
Healthcare Provider Resources
Educational Resources
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Behind the Headlines (XRAY)
Our XRAY program takes you behind the headlines to bring you reliable information about cancer research-related news and information.
Blog
Education and personal perspectives on topics of interest to our community.
Glossary
Find definitions for commonly used terms.
Brochures
Order or download our educational materials.
Webinars
Our live and on demand webinars feature presentations by experts on topics of interest and importance to our community.
Community Resources
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Previvors
Information and resources that address the unique needs of the previvor community.
LGBTQIA+
Information and resources for people who identify with the LGBTQIA+ community and who have an inherited mutation linked to cancer.
Health Disparity Resources
Information and resources focused on addressing cancer health disparities.
Lynch Syndrome
Learn about Lynch syndrome and find information, resources and research specifically for the Lynch syndrome community.
En Español
¿El cáncer en su familia es hereditario? Aprenda sobre la prueba genética para identificar el riego de cáncer hereditario y los pasos a seguir para proteger su salud y la de su familia
FORCE Partners
Learn about organizations we work with to advocate for greater awareness, broader access to care, and better treatment and prevention options for all those who are impacted by hereditary cancer.
Healthcare Provider Resources
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For Healthcare Providers
Information and resources for members of the healthcare or research community who focus on hereditary cancers.
For Researchers
Tips and tools to help investigators work with patient stakeholders to strengthen and accelerate their research.
Donate
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Hereditary Cancers
Genetic Testing
Hereditary Cancer Basics
Learn how gene mutations can lead to cancer, what types of cancer may be hereditary and how parents can pass inherited mutations to their children.
Cancer Risks by Gene
Read about different genes that are linked to hereditary cancer and the risks associated with inherited mutations in these genes.
How Do I Get Genetic Testing?
Learn more about genetic testing and how to take the next steps to get tested.
After Testing Now What
Learn how to make medical decisions and assemble your health care team once you receive your genetic test results.
Sharing Results with Family
Explore tips to help you communicate your family medical history or genetic test results with relatives.
Close menu
Risk Management & Treatment by Mutation & Cancer
Reconstruction or Going Flat
Menopause, Well-Being & Survivorship
Fertility & Family Planning
Risk Management & Treatment by Mutation
Review updated information on cancer risks and national guidelines on screening, prevention and treatment options listed by gene.
Risk Management & Treatment by Cancer
Review updated information on screening, prevention and treatment options listed by cancer site.
Risk Management & Treatment by Treatment Type
Review information on prevention and treatment options listed by treatment type
Risk Management for Transgender People
Review guidelines on prevention and screening options for transgender people with inherited mutations.
Types of Reconstruction
Understand the types of breast reconstruction.
Going Flat
Learn more about the option of going flat.
Preparation and Recovery
Prepare for surgery and recovery.
Photo and Video Gallery
See images & videos of individuals after mastectomy and reconstruction.
Menopause
Learn about ways to manage the effects of menopause with and without hormones.
Well-Being & Survivorship
Learn how to manage the short- and long-term effects of cancer risk, diagnosis, prevention and treatment.
Close menu
Enroll in Research
Research Advocacy
Search and Enroll
Ready to enroll? Our tools will help match you to hereditary cancer detection, prevention and treatment studies.
How to Find Studies
These tips and resources will help you locate clinical trials and studies enrolling people like you.
Why Enroll in Research?
Learn why you should consider enrolling in a research study and your rights and protections as a research participant.
Help Shape Research
FORCE trains patients with no science background to use their personal experiences to help guide hereditary cancer research.
Resources for Researchers
These tips and resources were developed by research advocates to help investigators work with patient stakeholders to strengthen and accelerate their research.
Close menu
Support
Paying for Care
Laws & Protections
Public Policy
Personalized Guidance
Match with a Peer Navigator volunteer with similar experience as you for confidential 1:1 phone/email support and a free resource guide.
Support Meetings & Partner Events
Review our calendar to connect with others and obtain support and vital resources.
Private Facebook Group
Connect with others over social media who are affected by hereditary cancer.
Message Boards
Register for our forum where you can discuss topics online 24/7 with other people who face similar hereditary cancer concerns.
Helpline
Ask questions and receive nonjudgmental support and resources in English and Spanish. A Genetic Counselor helpline is also available.
Decision Checklists and Tip Sheets
Use our interactive tool to create personalized lists of questions to ask your doctors and tips to prepare for surgeries and procedures.
Find Healthcare Providers
Locate services or medical experts knowledgeable in cancer genetics, including genetic counselors, oncologists, surgeons, fertility experts and more.
Volunteer
Get involved by supporting others, advocating for laws and research that benefit our community and raising awareness of hereditary cancer on social media.
Insurance & Reimbursement
Learn about health insurance coverage and reimbursement for healthcare services. Get tips on insurance appeals and customizable sample appeal letters.
Financial Assistance
Find national resources and grant programs to help offset costs for genetic services, cancer screenings, surgeries, treatments and more.
Federal Laws & Protections
Learn about laws and legal protections affecting the hereditary cancer community—ACA, GINA, WHRCA—and how to file a grievance or complaint.
State Laws
Get information on state laws that guide coverage and costs of cancer screenings and diagnostic imaging needed by those at risk of hereditary cancers.
Federal Policy Initiatives
Read about federal laws and legal protections affecting the hereditary cancer community and how to file a grievance or complaint.
State Policy Initiatives
Read about our engagement in key state legislative efforts, ensuring that the voice of the high-risk, hereditary cancer community is represented.
Get Involved
You can make a difference! Learn how you can help FORCE advocate for the hereditary cancer community at the state and federal levels.
Close menu
Educational Resources
Community Resources
Healthcare Provider Resources
Behind the Headlines (XRAY)
Our XRAY program takes you behind the headlines to bring you reliable information about cancer research-related news and information.
Blog
Education and personal perspectives on topics of interest to our community.
Glossary
Find definitions for commonly used terms.
Brochures
Order or download our educational materials.
Webinars
Our live and on demand webinars feature presentations by experts on topics of interest and importance to our community.
Previvors
Information and resources that address the unique needs of the previvor community.
LGBTQIA+
Information and resources for people who identify with the LGBTQIA+ community and who have an inherited mutation linked to cancer.
Health Disparity Resources
Information and resources focused on addressing cancer health disparities.
Lynch Syndrome
Learn about Lynch syndrome and find information, resources and research specifically for the Lynch syndrome community.
En Español
¿El cáncer en su familia es hereditario? Aprenda sobre la prueba genética para identificar el riego de cáncer hereditario y los pasos a seguir para proteger su salud y la de su familia
FORCE Partners
Learn about organizations we work with to advocate for greater awareness, broader access to care, and better treatment and prevention options for all those who are impacted by hereditary cancer.
For Healthcare Providers
Information and resources for members of the healthcare or research community who focus on hereditary cancers.
For Researchers
Tips and tools to help investigators work with patient stakeholders to strengthen and accelerate their research.
Education
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Insurance Coverage for Clinical Trial Participation: Significant Barriers Remain
September 19, 2017
Medicare Establishes National Coverage Policy for Next Generation Sequencing for Tumors
April 16, 2018
New Medicare Genetic Testing Policy: What Does It Mean to Me?
February 19, 2020
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