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Hereditary Cancer and Genetic Testing

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Hereditary Cancer

Learn about gene changes called mutations, how inherited mutations can lead to cancer, what types of cancer may be hereditary and how parents can pass gene mutations to their children.

What is Genetic Testing?

Explore information about genetic testing for an inherited mutation, the benefits and limitations of genetic testing and the type of results you might receive.

How to Get Genetic Testing

Review expert guidelines regarding who should consider genetic testing, how to find a genetics expert and how to move forward with testing.

Hereditary Cancer Genes and Risk

Read about different genes that are linked to hereditary cancer and the risks associated with inherited mutations in these genes.

After Testing, Now What?

Learn how to make medical decisions and assemble your health care team once you receive your genetic test results.

Sharing with Family

Discover steps that will help you prepare to communicate your family medical history or genetic test results with relatives.

Risk Management and Treatment

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Screening and Risk Reduction

Review national guidelines for cancer screening and prevention; this information is listed by gene mutation and by cancer type.

Cancer Treatment

Read about cancer treatment options listed by gene mutation, type of cancer and type of treatment.

Reconstruction or Going Flat

Understand options for having breast reconstruction or not after mastectomy.

Menopause

Learn about symptoms and options for managing early menopause caused by cancer treatment or preventive surgery.

Wellbeing and Survivorship

Discover how cancer treatment and prevention affects long-term health, quality of life and emotional well-being; explore options for addressing these issues.

Fertility and Family Planning

Understand the effects of cancer treatment and prevention on fertility and family planning, how pregnancy impacts hereditary cancer risk and options for assisted reproduction.

Research and Clinical Trials

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Why Enroll in Research?

Learn why you should consider enrolling in a research study and your rights and protections as a research participant.

How to Find Studies

These tips and resources will help you locate clinical trials and studies enrolling people like you.

Search and Enroll

Ready to enroll? Our tools will help match you to hereditary cancer detection, prevention and treatment studies.

Help Shape Research

FORCE trains patients who are new to science to use their personal experiences to help guide hereditary cancer research.

Research Collaborations

Learn about ongoing studies, and the role that FORCE, our research advocates, and our partners have played in shaping the research.

Privacy, Policy and Legal Issues

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Laws and Protections

Learn about key laws and legal protections that impact people with, or at increased risk of, hereditary cancer; and, how to file a grievance or complaint.

Public Policy Priorities

See what legislative and regulatory policy issues FORCE is actively engaged in, representing the unique needs of people and families affected by hereditary cancer.

Advocacy Archive

Read about the public policy initiatives that FORCE undertook in the past, ensuring that the voice of the hereditary cancer community was heard.

Support

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Personalized Guidance

Get matched with a Peer Navigator volunteer who shares a similar experience as you for confidential 1:1 phone/email support and receive a free expert-reviewed resource guide.

Local Support

FORCE has volunteers throughout the United States and in Essex, United Kingdom who are available to offer support and share resources.

Support Meetings and Events

Attend support meetings or learn from experts at webinars and conferences. You can ask questions, share your story or just listen.

Message Boards

Our message boards are available 24/7 and are the easiest way to reach out to others who are facing hereditary cancer.

Private Facebook Group

In this group, you can connect with others who are affected by hereditary cancer. Let’s unite and support each other.

Find Healthcare Providers

Locate medical experts who are knowledgeable in cancer genetics.

Insurance and Paying for Care

Find information on insurance coverage and financial assistance for genetic services, risk management and cancer treatment.

Volunteer

FORCE has opportunities for people of our community to get involved in significant ways to raise awareness, provide support or help promote research of hereditary cancer.

Education

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Behind the Headlines (XRAY)

Our XRAY program takes you behind the headlines to bring you reliable information about cancer research-related news and information.

Conference

Joining FORCEs Against Hereditary Cancer is a virtual conference designed to empower individuals and families facing hereditary cancer.

Webinars

Our live and on demand webinars feature presentations by experts on topics of interest and importance to our community.

Blog

Our blogs feature personal perspectives and deep dives into topics of interest to the hereditary cancer community.

Brochures

Order or download our educational materials.

Glossary

Find definitions for commonly used terms.

Our blog features educational information and personal perspectives relevant to the hereditary cancer community.

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Books And Movies (13)

Breast Reconstruction And Going Flat (11)

Cancer Treatment (10)

Decision Making (2)

Diversity And Inclusion (1)

Emotional Health And Well Being (3)

FORCE And FORCE Impact (24)

Fertility And Parenting (1)

Genetic Testing (15)

Health Equity And Disparities (9)

Health And Fitness (4)

Hereditary Cancer - General (10)

Inspirational (25)

Laws, Protections And Public Policy (26)

Men With Mutations (10)

Partnerships (2)

Quality Of Life (2)

Risk Management (5)

Supporting FORCE (3)

Volunteer Spotlight (52)

One Woman’s Breast Cancer Journey: It’s Not Just About the Breast

June 21, 2021

One Woman’s Breast Cancer Journey: It’s Not Just About the Breast

Posted in: Books And Movies
Tags: Hereditary Cancer, Breast Cancer, BRCA1, Coping With Risk

Most Recent

One Woman’s Breast Cancer Journey: It’s Not Just About the Breast

Surviving, and Thriving, as a Dad with a Cancer Gene Mutation

Actor Chad Boseman’s Death Raises Questions about Colorectal Cancer in African Americans

Living Life to its Fullest with an ATM Mutation in a Coronavirus Pandemic

Why I’m Choosing to Keep My Breasts (For Now)

Surviving, and Thriving, as a Dad with a Cancer Gene Mutation

June 14, 2021

Surviving, and Thriving, as a Dad with a Cancer Gene Mutation

Posted in: Men With Mutations
Tags: Hereditary Cancer, BRCA2, Men With Mutations

Actor Chad Boseman’s Death Raises Questions about Colorectal Cancer in African Americans

June 14, 2021

Actor Chad Boseman’s Death Raises Questions about Colorectal Cancer in African Americans

Posted in: XRAY, Health Equity And Disparities
Tags: Screening And Prevention, Health Disparities, Health Equity, Colorectal Cancer

Living Life to its Fullest with an ATM Mutation in a Coronavirus Pandemic

June 11, 2021

Living Life to its Fullest with an ATM Mutation in a Coronavirus Pandemic

Posted in: Stories
Tags: ATM, COVID19

Why I’m Choosing to Keep My Breasts (For Now)

June 11, 2021

Why I’m Choosing to Keep My Breasts (For Now)

Posted in: XRAY, Previvor
Tags: Hereditary Cancer, BRCA1, Screening And Prevention

Regaining Breast Sensation After Mastectomy

May 13, 2021

Regaining Breast Sensation After Mastectomy

Posted in: Breast Reconstruction And Going Flat
Tags: Breast Reconstruction, Risk-reducing Mastectomy, Quality Of Life

Did Breastfeeding my Daughter Reduce my Ovarian Cancer Risk?

May 03, 2021

Did Breastfeeding my Daughter Reduce my Ovarian Cancer Risk?

Posted in: XRAY, Previvor
Tags: Hereditary Cancer, Cancer Prevention, Ovarian Cancer, Previvor, Screening And Prevention

Volunteer Spotlight – Tanya Temkin

April 29, 2021

Volunteer Spotlight – Tanya Temkin

Posted in: Volunteer Spotlight
Tags: Ovarian Cancer, BRCA2, Volunteer

New Advancements in Cancer Screenings Bring Hope for the Future

April 23, 2021

New Advancements in Cancer Screenings Bring Hope for the Future

Posted in: XRAY, Cancer Treatment
Tags: Hereditary Cancer, BRCA1, Prostate Cancer

Why So Many of Us Quit Taking Tamoxifen

April 05, 2021

Why So Many of Us Quit Taking Tamoxifen

Posted in: XRAY, Quality Of Life
Tags: Breast Cancer, Cancer Prevention, BRCA2, Prophylactic Surgery

Understanding Breast Implant Risks

March 30, 2021

Understanding Breast Implant Risks

Posted in: Guidelines, XRAY
Tags: Cancer Prevention, Prophylactic Mastectomy, BRCA2, Prophylactic Surgery, Breast Reconstruction, Mastectomy, Risk-reducing Mastectomy

New Hope and Treatments for People with Metastatic Breast Cancer

March 29, 2021

New Hope and Treatments for People with Metastatic Breast Cancer

Posted in: XRAY, Cancer Treatment
Tags: Breast Cancer, Metastatic Breast Cancer

Increasing the Participation of Pregnant Women in Appropriate Clinical Research

March 24, 2021

Increasing the Participation of Pregnant Women in Appropriate Clinical Research

Posted in: Research
Tags: Research Advocacy

Lynch Syndrome Awareness Day – March 22nd 2021

March 22, 2021

Lynch Syndrome Awareness Day – March 22nd 2021

Posted in: Hereditary Cancer - General, Partnerships
Tags: Lynch Syndrome

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