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State Advocacy Initiatives

FORCE advocates for families facing hereditary cancer in areas such as access to care, research funding, insurance and privacy.

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Privacy, Policy and Legal Issues > State Initiatives

State Public Policy Initiatives

FORCE is engaged in a variety of state legislative initiatives—affordable access to genetic testing, high-risk “supplemental” cancer screenings, fertility treatments and cancer therapies, banning genetic discrimination, etc.—representing the unique needs of individuals with or at risk of hereditary cancer.

unsuccessful effort

High-risk breast screenings and diagnostic tests

HB2411 will require private/commercial health insurers to cover breast screenings (breast MRIs, diagnostic mammograms and breast ultrasounds) with no patient cost-sharing for individuals with a family history of cancer or who have additional factors that may increase their cancer risk.

unsuccessful effort

Genetic testing

HB2649 will require private/commercial health insurers to cover genetic counseling and multigene panel testing with no patient cost-sharing for individuals with a family history of cancer. 

in progress

Genetic counselor licensure

SB1043 will facilitate state licensure of genetic counselors by the American Board of Genetic Counseling (ABGC). 

unsuccessful effort

High-risk breast screenings and diagnostic tests

HB773/SB932 will require private/commercial health insurers to cover breast screenings (breast MRIs, diagnostic mammograms and breast ultrasounds) with no patient cost-sharing for individuals with a family history of cancer or who have additional factors that may increase their cancer risk. 

in progress

High-risk breast screenings and diagnostic tests

HB4180 will make the language in the state’s breast screening law gender-neutral, changing “woman” to “patient” and will require Medicaid and private/commercial health insurers to cover breast screenings (breast MRIs, diagnostic mammograms and breast ultrasounds) with no patient cost-sharing for individuals with a family history of cancer or who have additional factors that may increase their cancer risk. 

in progress

Fertility services

HB4112/SB2639 will facilitate private/commercial insurance coverage of the diagnosis and treatment of infertility, including medically appropriate fertility preservation, in-vitro fertilization (IVF) and preimplantation genetic diagnosis (PGD).

in progress

Genetic testing and associated cancer screenings

HB4562/SB2697 will require private/commercial health insurers to cover genetic testing with no patient cost-sharing for those with a personal or family history of cancer, and the associated guideline-recommended cancer screenings. 

law passed

Breast reconstruction and density notification

HB1058 will require private/commercial health insurers to cover post-mastectomy chest wall reconstruction and aesthetic flat closure. In addition, the bill would require that mammography facilities provide written notice if a patient has dense breast tissue.

in progress

High-risk breast screenings and diagnostic tests

HF2489/SF2358 will require private/commercial health insurers to cover breast screenings (breast MRIs, diagnostic mammograms and breast ultrasounds) with no patient cost-sharing for individuals with a family history of cancer or who have additional factors that may increase their cancer risk.

in progress

Protections against genetic discrimination

HSB539/SF2360 will prohibit life, long-term care and disability insurers from using genetic information when considering benefits, fees or coverage determinations. 

law passed

Cancer screenings

HB52 will require private/commercial health insurers and Medicaid to cover all cancer screenings recommended by the National Comprehensive Cancer Network or other guideline organizations with no-cost sharing for the patient. 

law passed

Breast screenings and diagnostic tests

HB115 will require private/commercial health insurers to cover mammograms, diagnostic and supplemental breast exams with no patient cost-sharing. 

unsuccessful effort

Protections against genetic discrimination

HB982/SB142 will prohibit life, long-term care and disability insurers from using genetic information when considering benefits, fees or coverage determinations.

in progress

Fertility preservation

Summary: H1041/S598 will facilitate private/commercial insurance coverage of the diagnosis and treatment of infertility, including medically appropriate fertility preservation.

in progress

Fertility preservation

Summary: HF1658/SF1704 will facilitate Medicaid and private/commercial insurance coverage of the diagnosis and treatment of infertility, including medically appropriate fertility preservation and in-vitro fertilization (IVF).

in progress

High-risk breast screenings and diagnostic tests

HB1144/SB2263 will require private/commercial health insurers to cover breast screenings (breast MRIs, diagnostic mammograms and breast ultrasounds) with no patient cost-sharing for individuals with a family history of cancer or who have additional factors that may increase their cancer risk. 

in progress

High-risk breast screenings and diagnostic tests

LB1353 will expand and improve current statutes, requiring private/commercial health insurers to cover breast screenings (breast MRIs, diagnostic mammograms and ultrasounds) for individuals with a family history of cancer or additional factors that may increase their cancer risk with no cost-sharing for the patient. 

in progress

High-risk prostate cancer screening

A1841/S3060 will require private/commercial health insurers to cover prostate screenings with no patient cost-sharing for individuals considered at increased risk. 

in progress

Genetic counselor licensure

A49/S3552 will facilitate state licensure of genetic counselors by the American Board of Genetic Counseling (ABGC). 

in progress

Limit step-therapy practices

A901/S1267 will significantly limit insurer step-therapy protocols and honor therapy exceptions for at least 12 months after the approval date.

in progress

Protections against genetic discrimination

A2083/S5415 will prohibit life, long-term care and disability insurers from using genetic information when considering benefits, fees or coverage determinations. 

in progress

Fertility preservation

SB1334 will facilitate private/commercial insurance coverage of fertility preservation services for individuals who may face medically-induced infertility.

in progress

Genetic testing and associated cancer screenings

HB3677/SB1264 will require most health insurers to cover genetic testing for those with a personal or family history of cancer and the associated guideline-recommended cancer screenings with no cost-sharing for the patient. 

in progress

High-risk breast screenings and diagnostic tests

H7737/S2070 will require private/commercial health insurers to cover breast screenings (breast MRIs, diagnostic mammograms and breast ultrasounds) with no patient cost-sharing for individuals with a family history of cancer or who have additional factors that may increase their cancer risk.

in progress

Protections against genetic discrimination

HB4218 will prohibit life, long-term care and disability insurers from using genetic information when considering benefits, fees or coverage determinations.

in progress

High-risk prostate cancer screening

HB2954/SB2883 will require private/commercial health insurers to cover prostate screenings with no patient cost-sharing for individuals considered at increased risk.

unsuccessful effort

Fertility services

HB2549/SB2629 will facilitate private/commercial insurance coverage of fertility preservation for individuals diagnosed with cancer.

in progress

High-risk breast screenings and diagnostic tests

H621 will require private/commercial health insurers to cover breast screenings (breast MRIs, diagnostic mammograms and breast ultrasounds) with no patient cost-sharing for individuals with a family history of cancer or who have additional factors that may increase their cancer risk. 

in progress

High-risk breast screenings and diagnostic tests

HB230 will require private/commercial health insurers to cover breast screenings (breast MRIs, diagnostic mammograms and breast ultrasounds) with no patient cost-sharing for individuals with a family history of cancer or who have additional factors that may increase their cancer risk.

unsuccessful effort

Fertility services

HB1151/SB5204 will facilitate private/commercial insurance coverage of the diagnosis and treatment of infertility, including medically appropriate fertility preservation and in-vitro fertilization (IVF).

unsuccessful effort

Genetic counselor licensure

SB714 will facilitate state licensure of genetic counselors by the American Board of Genetic Counseling (ABGC).

in progress

High-risk breast screenings and diagnostic tests

AB117/SB121 will require private/commercial health insurers and Medicaid to cover breast screenings (breast MRIs, diagnostic mammograms and breast ultrasounds) with no patient cost-sharing for individuals with a family history of cancer or who have additional factors that may increase their cancer risk.