FORCE: Facing Our Risk of Cancer Empowered

Hereditary Cancer and Genetic Testing

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Hereditary Cancer

Learn about gene changes called mutations, how inherited mutations can lead to cancer, what types of cancer may be hereditary and how parents can pass gene mutations to their children.

What is Genetic Testing?

Explore information about genetic testing for an inherited mutation, the benefits and limitations of genetic testing and the type of results you might receive.

How to Get Genetic Testing

Review expert guidelines regarding who should consider genetic testing, how to find a genetics expert and how to move forward with testing.

Hereditary Cancer Genes and Risk

Read about different genes that are linked to hereditary cancer and the risks associated with inherited mutations in these genes.

After Testing, Now What?

Learn how to make medical decisions and assemble your health care team once you receive your genetic test results.

Sharing with Family

Discover steps that will help you prepare to communicate your family medical history or genetic test results with relatives.

Risk Management and Treatment

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Screening and Risk Reduction

Review national guidelines for cancer screening and prevention; this information is listed by gene mutation and by cancer type.

Cancer Treatment

Read about cancer treatment options listed by gene mutation, type of cancer and type of treatment.

Reconstruction or Going Flat

Understand options for having breast reconstruction or not after mastectomy.

Menopause

Learn about symptoms and options for managing early menopause caused by cancer treatment or preventive surgery.

Wellbeing and Survivorship

Discover how cancer treatment and prevention affects long-term health, quality of life and emotional well-being; explore options for addressing these issues.

Fertility and Family Planning

Understand the effects of cancer treatment and prevention on fertility and family planning, how pregnancy impacts hereditary cancer risk and options for assisted reproduction.

Research and Clinical Trials

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Why Enroll in Research?

Learn why you should consider enrolling in a research study and your rights and protections as a research participant.

How to Find Studies

These tips and resources will help you locate clinical trials and studies enrolling people like you.

Search and Enroll

Ready to enroll? Our tools will help match you to hereditary cancer detection, prevention and treatment studies.

Help Shape Research

FORCE trains patients who are new to science to use their personal experiences to help guide hereditary cancer research.

Research Collaborations

Learn about ongoing studies, and the role that FORCE, our research advocates, and our partners have played in shaping the research.

Privacy, Policy and Legal Issues

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Laws and Protections

Learn about key laws and legal protections that impact people with, or at increased risk of, hereditary cancer; and, how to file a grievance or complaint.

Public Policy Priorities

See what legislative and regulatory policy issues FORCE is actively engaged in, representing the unique needs of people and families affected by hereditary cancer.

Advocacy Archive

Read about the public policy initiatives that FORCE undertook in the past, ensuring that the voice of the hereditary cancer community was heard.

Support

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Personalized Guidance

Get matched with a Peer Navigator volunteer who shares a similar experience as you for confidential 1:1 phone/email support and receive a free expert-reviewed resource guide.

Support Meetings and Events

Attend support meetings or learn from experts at webinars and conferences. You can ask questions, share your story or just listen.

Message Boards

Our message boards are available 24/7 and are the easiest way to reach out to others who are facing hereditary cancer.

Private Facebook Group

In this group, you can connect with others who are affected by hereditary cancer. Let’s unite and support each other.

Helpline

Peer volunteers return calls within 48 hours and provide nonjudgmental support and resources in English and Spanish. A Genetic Counselor helpline is also available.

Find Healthcare Providers

Locate medical experts who are knowledgeable in cancer genetics.

Insurance and Paying for Care

Find information on insurance coverage and financial assistance for genetic services, risk management and cancer treatment.

Volunteer

FORCE has opportunities for people of our community to get involved in significant ways to raise awareness, provide support or help promote research of hereditary cancer.

Education

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Behind the Headlines (XRAY)

Our XRAY program takes you behind the headlines to bring you reliable information about cancer research-related news and information.

Conference

Joining FORCEs Against Hereditary Cancer is a virtual conference designed to empower individuals and families facing hereditary cancer.

Webinars

Our live and on demand webinars feature presentations by experts on topics of interest and importance to our community.

Blog

Our blogs feature personal perspectives and deep dives into topics of interest to the hereditary cancer community.

Brochures

Order or download our educational materials.

Glossary

Find definitions for commonly used terms.

¿El cáncer en su familia es hereditario? Aprenda sobre la prueba genética para identificar el riego de cáncer hereditario y los pasos a seguir para proteger su salud y la de su familia

I am here to learn about:

Genetic Testing

Biomarker Testing

Genetics and Breast Cancer

Genetics and Pancreatic Cancer

I've Tested Positive, Now What?

Information for Healthcare Professionals

Men with Mutations

Women with Mutations

Managing Menopause

Genetics and Prostate Cancer

Genetics and Ovarian Cancer

Genetics and Endometrial Cancer

Genetics and Colorectal Cancer

Information for Researchers

Información sobre Cáncer y Recursos

Algunos cánceres son causados por mutaciones heredadas. Un examen de saliva o sangre puede identificar mutaciones conocidas y puede asistirlo a usted y a su familia a aprender más sobre su riesgo de cáncer hereditario.

La información adjunta puede ayudar a entender su riesgo de cáncer y tomar decisiones para usted y sus familiares. Presione cada tema para obtener más información. Si usted necesita ayuda, por favor comunicarse con la línea de ayuda al 866-288-7475, ext. 720. Usted no está solo.

Seminarios Web

Comunicación familiar sobre pruebas genéticas

Manejo del riesgo de cáncer de mama

Los ABCs de la genética del cáncer

Tratamiento del cáncer de mama hereditario

Participación en ensayos clínicos

Prueba Genética

Información importante sobre genes y cáncer

Webinar: Los ABCs de la genética del cáncer

Estudio: Diferencias raciales y étnicas en pruebas genéticas realizadas en mujeres jóvenes que padecieron cáncer de mama

Historia personal: la experiencia de una mujer joven que se realizó pruebas genéticas y una mastectomía (cirugía para quitarse los senos) para reducir el riesgo de cáncer

Los genes entre nosotros: Guía para dar a conocer resultados de pruebas genéticas con familiares

Prevención del Cáncer y Detección

Webinar: Manejo del riesgo de cáncer de mama

Estudio: Respuestas de pacientes y sus experiencias de “quedarse planas”

Estudio: Las mujeres que hacen ejercicio tienen menos riesgo de padecer cáncer de mama sin importar si tienen antecedentes familiares de la enfermedad

Historia personal: la experiencia de una mujer joven que se realizó pruebas genéticas y una mastectomía (cirugía para quitarse los senos) para reducir el riesgo de cáncer

Estudio: La lactancia materna como factor para disminuir el riesgo de cáncer de ovario en mujeres con mutaciones en el BRCA

Tratamientos para el Cáncer

¿Pueden las pruebas de diagnóstico identificar a más pacientes con cáncer de mama que pueden omitir la quimioterapia sin correr riesgos?

Webinar: Tratamiento del cáncer de mama hereditario

La ampliación del acceso a la cobertura de Medicaid estipulada en la Ley sobre la atención médica asequible está vinculada con la reducción de la mortalidad por cáncer

Respuestas de pacientes y sus experiencias de “quedarse planas”

Una nueva prueba de sangre puede ayudar a detectar el cáncer de mama en fase inicial en pacientes que tienen mayor riesgo de recaída

Demora en el diagnóstico y tratamiento del cáncer de mama en mujeres jóvenes

La importancia de la diversidad de razas en estudios clínicos

El cáncer de mama entre las mujeres hispanas en Estados Unidos varía dependiendo del país de origen

La experiencia que tienen los pacientes que padecen cáncer de mama con la hormonoterapia

Salud y Bienestar

Noticia corta: El mejor momento para realizarse mamografías después de recibir la vacuna contra el COVID-19

Directriz: Vacunas contra el COVID para personas con cáncer

El COVID-19 y el cáncer

Historia personal: cómo mejorar la calidad de vida de personas con cáncer de mama avanzado

Las mujeres que hacen ejercicio tienen menos riesgo de padecer cáncer de mama sin importar si tienen antecedentes familiares de la enfermedad

Apoyo y Recursos

Regístrese para recibir información por correo electrónico

Colorectal Cancer Alliance

El Basser Center para BRCA

Pancreatic Cancer Action Network

This Portal Sponsored By:

Susan G. Komen

CDC

AstraZeneca

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Facing Our Risk of Cancer Empowered
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