Privacy, Policy and Legal Issues > Public Policy Initiatives

Expand Medicare beneficiary access to genetic counseling, testing, cancer screening & prevention

Medicare covers genetic testing only for people already diagnosed with cancer, regardless of family history. For individuals with an inherited mutation causing increased cancer risk, coverage of many screenings and risk-reducing interventions is prohibited by law. This legislation will modify the Medicare statutes to allow coverage of these potentially life-saving services.

USPSTF Agrees to Develop National Recommendations 

December 17, 2021 – Today, FORCE was notified that the U.S. Preventive Services Task Force (USPSTF) has agreed to add Lynch syndrome-related cancers to its list of preventive services under consideration. This is a victory for the hereditary cancer community and individuals at increased risk of colorectal and related cancers!

Oral chemotherapy has become the standard of care for many types of cancer. Importantly, most cancer therapies taken by mouth do not have IV or injected alternatives, and are the only option for some patients. Act Now to ask your lawmakers to support the Cancer Drug Coverage Parity Act, federal legislation that will ensure equal insurance coverage of cancer treatments regardless of how they are administered.

October 27, 2021 - The FDA released new guidance on breast implant labeling and communication today, recommending a 'black box warning,' addition of a decision checklist in the patient brochure, and new implant rupture screening guidelines, changing the timeline and adding ultrasound as an alternative to breast MRI.

PALS (Protecting Access to Lifesaving Screening) Act - H.R. 2412 / S. 4612

Originally enacted in 2015, reauthorization of the PALS Act is necessary to ensure that annual mammograms for women starting at age 40 will remain covered by health insurers with no cost to the patient. Access to these life-saving breast screenings is crucial!

Genetic counselors provide crucial information and expertise. But, did you know that these knowledgeable providers are not approved Medicare practitioners? The Access to Genetic Counselor Services Act (H.R. 2144/S. 1450) aims to remedy this issue. Join us in support of genetic counseling coverage for Medicare beneficiaries and expanded access to genetic counseling services for all Americans.

Take Action Now 2022 Priorities Advocacy Archive

News Briefs

4/25/2022 - FORCE added its support to an effort spearheaded by SNMMI asking the House Energy and Commerce and Ways and Means Committee Leadership to schedule a hearing on the Facilitating Innovative Nuclear Diagnostics (FIND) Act. 

5/2022 - Joined a coalition letter to the HHS Secretary emphasizing that regulatory reform of the framework for clinical laboratory diagnostics is essential to protect patients and ensure access to innovative, high-quality diagnostic tests.

3/29/2022 - Signed on in support of the Right Drug Dose Now (Right) Act, which will advance utilization of evidence-based pharmacogenomic (PGx) information in clinical practice, advance precision medicine, and improve quality of care.

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