The ACA and GINA work together for the hereditary cancer community
Members of our community often have questions about the laws protecting people with hereditary cancer and inherited mutations. There are also misunderstandings about the definition of a pre-existing condition. Here, we clarify what is considered a pre-existing condition and the primary laws that protect people at increased risk of or affected by hereditary cancer.
September 29, 2020 - The FDA released new guidance on breast implant labeling and communication today. The agency recommends that implant manufacturers include a boxed warning and a patient decision checklist into the patient brochure; and, provides new implant rupture screening recommendations, changing the timeline and adding ultrasound as an alternative to MRI.
July 29, 2020 - The COVID-19 pandemic has touched all aspects of American life, from education and employment to travel, hobbies and health care. FORCE understands the unique challenges of the hereditary cancer community—survivors and previvors—and has been working tirelessly to help address those needs. In addition to moving our programs to virtual formats, we have been very active in advocating for public policies that provide relief.
July 1, 2020 - Florida is the first U.S. state to enact a law that protects genetic information from life, long-term care and disability insurers, which are exempt from the national protections provided by the GINA. Effective January 1, 2021, the new law bars insurers from asking for genetic information or using genetic test results in any way; they cannot deny, limit or cancel insurance coverage, or set different premiums based on genetic information or DNA.
Hereditary cancers are often diagnosed at younger ages and are more aggressive than cancers in the average-risk population. Earlier screening is recommended for women with inherited genetic mutations associated with increased cancer risk, Black women and others. This is why we are asking that you join us in supporting the reauthorization of two important laws—the PALS Act and the EARLY Act.
Genetic counselors provide crucial information and expertise. But, did you know that these experts are not approved Medicare practitioners? The "Access to Genetic Counselor Services Act" (H.R. 3235) aims to remedy this issue. Join FORCE and the National Society of Genetic Counselors to support coverage of genetic counseling for Medicare beneficiaries and expanded access to genetic counseling services for all Americans.
10/9/2020 - Endorsed the Senate's version of the CLINICAL TREATMENT Act (S.4742), which would require Medicaid to cover routine care costs for patients with life-threatening conditions participating in clinical trials.
10/5/2020 - Collaborated in submitting comments in support of proposed changes to Medicare's Laboratory Date of Service Rule which will reduce testing and treatment delays for cancer patients.
9/10/2020 - Urged Congress to work toward enactment of the FY21 Defense Appropriations Act, to ensure that the Defense Health Research Programs, including the CDMRP, are fully funded in fiscal year 2021.
8/19/2020 - Joined Medicare stakeholders and advocacy groups in calling for copay assistance for Part D beneficiaries in response to the COVID pandemic pressures.