FORCE advocates for families facing hereditary cancer in areas such as access to care, research funding, insurance and privacy.

Expand Medicare Access to Genetic Testing, Screening & Prevention

Medicare covers genetic testing only for people already diagnosed with cancer. Even if an individual pays out of pocket and learns they have a hereditary cancer mutation, coverage of high-risk cancer screenings or risk-reducing surgeries is legally prohibited. The Reducing Hereditary Cancer Act will modify the Medicare statutes to remedy these issues.

Genetic counselors provide crucial information and expertise. But, did you know that these knowledgeable providers are not approved Medicare practitioners? The Access to Genetic Counselor Services Act (H.R. 2144/
S. 1450) aims to remedy this issue. Join FORCE and the National Society of Genetic Counselors to support coverage of genetic counseling for Medicare beneficiaries and expanded access to genetic counseling services for all Americans.

Comments on New Colorectal Cancer Screening Recommendations

February 3, 2021 – Today, FORCE asked the U.S. Preventive Services Task Force (USPSTF) to develop Lynch syndrome screening recommendations to identify individuals at increased risk of colorectal and related cancers; we encouraged partner organizations to do the same. This follows recent comments on its updated draft colorectal cancer screening guidelines.

September 29, 2020 - The FDA released new guidance on breast implant labeling and communication today. The agency recommends that implant manufacturers incorporate a 'black box warning' and patient decision checklist into the patient brochure; and, provides new implant rupture screening recommendations, changing the timeline and adding ultrasound as an alternative to MRI.

The ACA and GINA work together for the hereditary cancer community
Members of our community often have questions about the laws protecting people with hereditary cancer and inherited mutations. There are also misunderstandings about the definition of a pre-existing condition. Here, we clarify what is considered a pre-existing condition and the primary laws that protect people at increased risk of or affected by hereditary cancer. 

July 29, 2020 - The COVID-19 pandemic has touched all aspects of American life, from education and employment to travel, hobbies and health care. FORCE understands the unique challenges of the hereditary cancer community—survivors and previvors—and has been working tirelessly to help address those needs. In addition to moving our programs to virtual formats, we have been very active in advocating for public policies that provide relief.

Take Action Now 2021 Priorities Advocacy Archive

News Briefs

7/1/2021 - Effective today, North Carolina's Medicaid program will cover genetic counseling and BRCA mutation testing for those who have "higher than average risk" for the development of certain cancers based on specific personal and/or family history of the disease.

6/30/2021 - FORCE added its support to a letter sent to Senate HELP Committee leadership urging the prioritization of diagnostics reform on behalf of the In-vitro Diagnostics (IVD) Reform Coalition and the communities it represents.

5/21/2021 - Joined the Defense Health Research Consortium in a letter asking House and Senate leadership to continue support for the defense health research programs funded through the Department of Defense (DoD) Congressionally Directed Medical Research Programs (CDMRP). 


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Genetech Merck