Privacy, Policy and Legal Issues > Public Policy Initiatives

Expand Medicare Access to Genetic Testing, Screening & Prevention

Medicare covers genetic testing only for people already diagnosed with cancer. Even if an individual pays out of pocket and learns they have a hereditary cancer mutation, coverage of the expert-recommended high-risk cancer screenings or risk-reducing surgeries is legally prohibited. The Reducing Hereditary Cancer Act will modify the Medicare statutes to remedy these issues.

Comments on New Colorectal Cancer Screening Recommendations

February 3, 2021 – Today, FORCE asked the U.S. Preventive Services Task Force (USPSTF) to develop Lynch syndrome screening recommendations to identify individuals at increased risk of colorectal and related cancers; we encouraged partner organizations to do the same. This follows recent comments on its updated draft colorectal cancer screening guidelines.

January 2021 - Hereditary cancers are often diagnosed at younger ages and are more aggressive than cancers in the average-risk population. Earlier, more intensive, more frequent screenings are recommended for women with inherited genetic mutations associated with increased risk of breast cancer, Black women and others. This is why we successfully supported the reauthorization of two important laws—the PALS Act and the EARLY Act.

September 29, 2020 - The FDA released new guidance on breast implant labeling and communication today. The agency recommends that implant manufacturers incorporate a 'black box warning' and patient decision checklist into the patient brochure; and, provides new implant rupture screening recommendations, changing the timeline and adding ultrasound as an alternative to MRI.

The ACA and GINA work together for the hereditary cancer community
Members of our community often have questions about the laws protecting people with hereditary cancer and inherited mutations. There are also misunderstandings about the definition of a pre-existing condition. Here, we clarify what is considered a pre-existing condition and the primary laws that protect people at increased risk of or affected by hereditary cancer. 

July 29, 2020 - The COVID-19 pandemic has touched all aspects of American life, from education and employment to travel, hobbies and health care. FORCE understands the unique challenges of the hereditary cancer community—survivors and previvors—and has been working tirelessly to help address those needs. In addition to moving our programs to virtual formats, we have been very active in advocating for public policies that provide relief.

Take Action Now 2021 Priorities Advocacy Archive

News Briefs

5/21/2021 - Joined the Defense Health Research Consortium in a letter asking House and Senate leadership to continue support for the defense health research programs funded through the Department of Defense (DoD) Congressionally Directed Medical Research Programs (CDMRP). 

3/31/2021 - Expressed support for legislation (S.5355/A.2151) that would establish genetic counseling as a licensed profession in the state of New York.

3/16/2021 - Signed on to support the Medicare Multi-Cancer Early Detection Screening Coverage Act of 2021 (H.R. 1946), which will give CMS authority to cover blood-based multi-cancer early detection tests and future test methods, once approved by the FDA.

2/17/2021 - In a letter to President Biden, underscored the urgency of prioritizing access to the COVID-19 vaccine for patients with active cancer and survivors of cancer.

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