Privacy, Policy and Legal Issues > Public Policy Priorities

January 2021 - Hereditary cancers are often diagnosed at younger ages and are more aggressive than cancers in the average-risk population. Earlier, more intensive or more frequent screenings are recommended for women with inherited genetic mutations associated with increased risk of breast cancer, Black women and others. This is why we successfully supported the reauthorization of two important laws—the PALS Act and the EARLY Act.

Asks for Guidance on Identifying
High-Risk Patients

November 23, 2020 – Today, FORCE submitted comments on new USPSTF colorectal cancer screening guidelines. A panel of medical experts, the USPSTF reviews and develops preventive care recommendations to guide primary care providers in determining appropriate screening and preventive care—and informs insurance coverage of certain preventive services.

September 29, 2020 - The FDA released new guidance on breast implant labeling and communication today. The agency recommends that implant manufacturers incorporate a 'black box warning' and patient decision checklist into the patient brochure; and, provides new implant rupture screening recommendations, changing the timeline and adding ultrasound as an alternative to MRI.

The ACA and GINA work together for the hereditary cancer community
Members of our community often have questions about the laws protecting people with hereditary cancer and inherited mutations. There are also misunderstandings about the definition of a pre-existing condition. Here, we clarify what is considered a pre-existing condition and the primary laws that protect people at increased risk of or affected by hereditary cancer. 

July 29, 2020 - The COVID-19 pandemic has touched all aspects of American life, from education and employment to travel, hobbies and health care. FORCE understands the unique challenges of the hereditary cancer community—survivors and previvors—and has been working tirelessly to help address those needs. In addition to moving our programs to virtual formats, we have been very active in advocating for public policies that provide relief.

July 1, 2020 - Florida is the first U.S. state to enact a law that protects genetic information from life, long-term care and disability insurers, which are exempt from the national protections provided by the GINA. Effective January 1, 2021, the new law bars insurers from asking for genetic information or using genetic test results in any way; they cannot deny, limit or cancel insurance coverage, or set different premiums based on genetic information or DNA.

Take Action Now Advocacy Archive
News Briefs

12/14/2020 - Reached out to Hill leadership requesting that any end-of-year legislative package include a permanent extension of the 7.5% threshold for medical expense deductions. 

12/10/2020 - Joined over 300 national, state and community organizations in a letter to the Biden-Harris Transition Team urging the incoming administration to prioritize healthcare immediately upon taking office and outlining key priorities. 

12/9/2020 - Signed on to a letter asking Congressional leadership to include the Removing Barriers to Colorectal Cancer Screening Act (HR1570/S668) in the year-end legislative package, waiving Medicare coinsurance if polyps are found/removed during a colonoscopy screening.

11/17/2020 - Sent a letter to Texas legislators expressing support for genetic counselor licensure, an important mechanism to help patients and providers identify appropriately trained and qualified genetic counseling professionals.

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