FORCE Blog | hereditary cancer research

Hereditary Cancer and Genetic Testing

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Hereditary Cancer

Learn about gene changes called mutations, how inherited mutations can lead to cancer, what types of cancer may be hereditary and how parents can pass gene mutations to their children.

What is Genetic Testing?

Explore information about genetic testing for an inherited mutation, the benefits and limitations of genetic testing and the type of results you might receive.

How to Get Genetic Testing

Review expert guidelines regarding who should consider genetic testing, how to find a genetics expert and how to move forward with testing.

Hereditary Cancer Genes and Risk

Read about different genes that are linked to hereditary cancer and the risks associated with inherited mutations in these genes.

After Testing, Now What?

Learn how to make medical decisions and assemble your health care team once you receive your genetic test results.

Sharing with Family

Discover steps that will help you prepare to communicate your family medical history or genetic test results with relatives.

Risk Management and Treatment

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Screening and Risk Reduction

Review national guidelines for cancer screening and prevention; this information is listed by gene mutation and by cancer type.

Cancer Treatment

Read about cancer treatment options listed by gene mutation, type of cancer and type of treatment.

Reconstruction or Going Flat

Understand options for having breast reconstruction or not after mastectomy.

Menopause

Learn about symptoms and options for managing early menopause caused by cancer treatment or preventive surgery.

Wellbeing and Survivorship

Discover how cancer treatment and prevention affects long-term health, quality of life and emotional well-being; explore options for addressing these issues.

Fertility and Family Planning

Understand the effects of cancer treatment and prevention on fertility and family planning, how pregnancy impacts hereditary cancer risk and options for assisted reproduction.

Research and Clinical Trials

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Why Enroll in Research?

Learn why you should consider enrolling in a research study and your rights and protections as a research participant.

How to Find Studies

These tips and resources will help you locate clinical trials and studies enrolling people like you.

Search and Enroll

Ready to enroll? Our tools will help match you to hereditary cancer detection, prevention and treatment studies.

Help Shape Research

FORCE trains patients who are new to science to use their personal experiences to help guide hereditary cancer research.

Research Collaborations

Learn about ongoing studies, and the role that FORCE, our research advocates, and our partners have played in shaping the research.

Privacy, Policy and Legal Issues

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Laws and Protections

Learn about key laws and legal protections that impact people with, or at increased risk of, hereditary cancer; and, how to file a grievance or complaint.

Public Policy Priorities

See what legislative and regulatory policy issues FORCE is actively engaged in, representing the unique needs of people and families affected by hereditary cancer.

Advocacy Archive

Read about the public policy initiatives that FORCE undertook in the past, ensuring that the voice of the hereditary cancer community was heard.

Support

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Personalized Guidance

Get matched with a Peer Navigator volunteer who shares a similar experience as you for confidential 1:1 phone/email support and receive a free expert-reviewed resource guide.

Local Support

FORCE has volunteers throughout the United States and in Essex, United Kingdom who are available to offer support and share resources.

Support Meetings and Events

Attend support meetings or learn from experts at webinars and conferences. You can ask questions, share your story or just listen.

Message Boards

Our message boards are available 24/7 and are the easiest way to reach out to others who are facing hereditary cancer.

Helpline

Peer volunteers return calls within 48 hours and provide nonjudgmental support and resources in English and Spanish. A Genetic Counselor helpline is also available.

Find Healthcare Providers

Locate medical experts who are knowledgeable in cancer genetics.

Insurance and Paying for Care

Find information on insurance coverage and financial assistance for genetic services, risk management and cancer treatment.

Volunteer

FORCE has opportunities for people of our community to get involved in significant ways to raise awareness, provide support or help promote research of hereditary cancer.

Education

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Behind the Headlines (XRAY)

Our XRAY program takes you behind the headlines to bring you reliable information about cancer research-related news and information.

Webinars

Our live and on demand webinars feature presentations by experts on topics of interest and importance to our community.

Blog

Our blogs feature personal perspectives and deep dives into topics of interest to the hereditary cancer community.

Brochures

Order or download our educational materials.

Our blog features educational information and personal perspectives relevant to the hereditary cancer community.

Education > Our Blog > Tag: hereditary cancer research

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Books And Movies (12)

Breast Reconstruction And Going Flat (9)

Cancer Treatment (8)

Decision Making (2)

Emotional Health And Well Being (3)

FORCE And FORCE Impact (28)

Fertility And Parenting (1)

Genetic Testing (12)

Health Equity And Disparities (7)

Health And Fitness (4)

Hereditary Cancer - General (8)

Inspirational (27)

Laws, Protections And Public Policy (27)

Men With Mutations (9)

Quality Of Life (1)

Risk Management (5)

Supporting FORCE (5)

Volunteer Spotlight (49)

Prioritizing research for metastatic hereditary cancer

July 12, 2011

Prioritizing research for metastatic hereditary cancer

Posted in: Research, Cancer Treatment
Tags: Breast Cancer, Hereditary Cancer Research, BRCA1, Metastatic Breast Cancer

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Exclusive gene patent on BRCA: Adding burden to an already overburdened community

February 22, 2012

Exclusive gene patent on BRCA: Adding burden to an already overburdened community

Posted in: Laws, Protections And Public Policy, Research
Tags: BRCA, Hereditary Cancer, Breast Cancer, Cancer Prevention, Hereditary Cancer Research, Ovarian Cancer, Genetic Testing, BRCA1, BRCA2, FDA, SACGHS, Previvor, Gene Testing, Survivor, Gene Patenting

Why Shouldn’t We Have It All?

March 05, 2012

Why Shouldn’t We Have It All?

Posted in: Inspirational, Voices
Tags: BRCA, Hereditary Cancer, Breast Cancer, Cancer Prevention, Hereditary Cancer Research, Ovarian Cancer, Genetic Counseling, Prophylactic Mastectomy, BRCA1, BRCA2, Previvor, Prophylactic Surgery, Gene Testing, Survivor, Young Survivor, Ovarian Cancer Early Detection, HBOC

Overall Health: Addressing the Big Picture

April 02, 2012

Overall Health: Addressing the Big Picture

Posted in: Hereditary Cancer - General
Tags: BRCA, Breast Cancer, Cancer Prevention, Hereditary Cancer Research, Ovarian Cancer, Genetic Counseling, Genetic Testing, Prophylactic Mastectomy, BRCA1, BRCA2, Previvor, Prophylactic Surgery, Gene Testing, Survivor, Exercise, Fitness, Ovarian Cancer Early Detection, HBOC

13 Tips for Incorporating Fitness into Your Life

April 27, 2012

13 Tips for Incorporating Fitness into Your Life

Posted in: Health And Fitness
Tags: BRCA, Breast Cancer, Cancer Prevention, Hereditary Cancer Research, Ovarian Cancer, Genetic Testing, BRCA1, BRCA2, Previvor, Gene Testing, Survivor, Exercise, Fitness

Applying Personalized Medicine to Disease Screening and Prevention

August 06, 2012

Applying Personalized Medicine to Disease Screening and Prevention

Posted in: Laws, Protections And Public Policy
Tags: BRCA, Genetics, Hereditary Cancer, Breast Cancer, Cancer Prevention, Hereditary Cancer Research, Ovarian Cancer, Genetic Counseling, Prophylactic Mastectomy, BRCA1, BRCA2, Prophylactic Surgery, Gene Testing, Survivor, Ovarian Cancer Early Detection, HBOC, Prostate Cancer, PSA, USPSTF, Early Detection, Personalized Medicine, Screening And Prevention

13 Developments That Have Helped the HBOC Community

September 06, 2012

13 Developments That Have Helped the HBOC Community

Posted in: Hereditary Cancer - General
Tags: BRCA, Hereditary Cancer, Breast Cancer, Cancer Prevention, Hereditary Cancer Research, Ovarian Cancer, Genetic Testing, Prophylactic Mastectomy, BRCA2, Previvor, Ovarian Cancer Early Detection, Oophorectomy

Weighing the Risks and Benefits of Screening Mammography

December 03, 2012

Weighing the Risks and Benefits of Screening Mammography

Posted in: Research , Risk Management
Tags: BRCA, Breast Cancer, Hereditary Cancer Research, BRCA1, BRCA2, Previvor, Young Survivor, HBOC, USPSTF, Screening And Prevention

Clinical Trials for Hereditary Cancer: Where the Rubber Meets the Road

December 12, 2012

Clinical Trials for Hereditary Cancer: Where the Rubber Meets the Road

Posted in: Research
Tags: BRCA, Breast Cancer, Hereditary Cancer Research, BRCA1, BRCA2, FDA, Clinical Trials, PARP Inhibitor

Drawing Attention To High-risk Screening

January 17, 2013

Drawing Attention To High-risk Screening

Posted in: Risk Management , Guidelines
Tags: BRCA, Breast Cancer, Cancer Prevention, Hereditary Cancer Research, Prophylactic Mastectomy, BRCA1, BRCA2, Previvor, Prophylactic Surgery, Survivor, Ovarian Cancer Early Detection, HBOC, USPSTF, Screening And Prevention

Hopeful Progress in Ovarian Cancer Prevention Research

February 24, 2013

Hopeful Progress in Ovarian Cancer Prevention Research

Posted in: Research
Tags: BRCA, Cancer Prevention, Hereditary Cancer Research, Ovarian Cancer, Genetic Testing, BRCA1, BRCA2, Prophylactic Surgery, Ovarian Cancer Early Detection, Screening And Prevention

Gene Discovery, Patents, and the Community

March 22, 2013

Gene Discovery, Patents, and the Community

Posted in: FORCE And FORCE Impact , Hereditary Cancer - General
Tags: BRCA, Hereditary Cancer, Breast Cancer, Hereditary Cancer Research, Genetic Counseling, Genetic Testing, BRCA1, BRCA2, Previvor, HBOC, Screening And Prevention

Challenges to Hereditary Cancer Research

September 06, 2013

Challenges to Hereditary Cancer Research

Posted in: Research
Tags: Hereditary Cancer Research, Clinical Trials, Patient Engagement, Patient Centered Research

XRAYS Program Looks Behind the Headlines to Make Sense of Cancer Research

August 24, 2015

XRAYS Program Looks Behind the Headlines to Make Sense of Cancer Research

Posted in: XRAY
Tags: BRCA, Breast Cancer, Hereditary Cancer Research, Genetic Counseling, BRCA1, BRCA2, Previvor, Gene Testing, Survivor, Young Survivor, HBOC

Flawed Research and Reporting on the “Angelina Effect” Could Threaten Access to HBOC Care

January 26, 2017

Flawed Research and Reporting on the “Angelina Effect” Could Threaten Access to HBOC Care

Posted in: Laws, Protections And Public Policy , XRAY
Tags: BRCA, Hereditary Cancer, Breast Cancer, Hereditary Cancer Research, Prophylactic Mastectomy, BRCA2, Previvor, Gene Testing, HBOC, PALB2, CHEK2, ATM

Advocacy Through Writing and Research

July 09, 2020

Advocacy Through Writing and Research

Posted in: Research
Tags: Hereditary Cancer, Hereditary Cancer Research, Research Advocacy, Research Studies

Working with Industry to Increase Patient Engagement in Drug Development

August 17, 2017

Working with Industry to Increase Patient Engagement in Drug Development

Posted in: Research
Tags: Hereditary Cancer Research, Patient Advocacy, Patient-centered Outcomes, Patient Engagement, Cancer Research, Precision Medicine

WISDOM Study: Investigating a Personalized Approach to Breast Cancer Screening

September 20, 2017

WISDOM Study: Investigating a Personalized Approach to Breast Cancer Screening

Posted in: Research
Tags: Hereditary Cancer Research, Genetic Counseling, Gene Testing, Personalized Medicine, Screening And Prevention, Mammogram

No Longer Alone: 1000 People Benefit from Personalized Cancer Risk Support

October 23, 2017

No Longer Alone: 1000 People Benefit from Personalized Cancer Risk Support

Posted in: FORCE And FORCE Impact
Tags: BRCA, Hereditary Cancer, Breast Cancer, Cancer Prevention, Hereditary Cancer Research, Ovarian Cancer, Genetic Testing, Previvor, Survivor, HBOC, Prostate Cancer, Screening And Prevention, PALB2, PTEN, CHEK2, ATM, RAD50

Where's FORCE? March and April

May 30, 2018

Where's FORCE? March and April

Posted in: Laws, Protections And Public Policy , FORCE And FORCE Impact
Tags: BRCA, Hereditary Cancer, Breast Cancer, Hereditary Cancer Research, Ovarian Cancer, Genetic Testing, Survivor, HBOC, PALB2, Cancer Advocacy, Pancreatic Cancer, ATM

XRAYS Blog: Sharsheret Webinar Helps People Make Sense of Breaking News in Breast and Ovarian Cancer

November 03, 2018

XRAYS Blog: Sharsheret Webinar Helps People Make Sense of Breaking News in Breast and Ovarian Cancer

Posted in: XRAY
Tags: BRCA, Breast Cancer, Hereditary Cancer Research, Ovarian Cancer, BRCA1, Cancer Research

I am Thankful for YOU This Holiday Season

November 26, 2018

I am Thankful for YOU This Holiday Season

Posted in: Supporting FORCE , FORCE And FORCE Impact
Tags: BRCA, Hereditary Cancer, Hereditary Cancer Research, HBOC, Personalized Medicine, HBOC Research

FORCE and Other Groups Meet with the Centers for Medicare and Medicaid Services (CMS)

February 22, 2019

FORCE and Other Groups Meet with the Centers for Medicare and Medicaid Services (CMS)

Posted in: Laws, Protections And Public Policy
Tags: BRCA, Hereditary Cancer, Hereditary Cancer Research, Screening And Prevention, PALB2, ATM

Improving Memory in Menopause: the IMPRES Study

May 02, 2019

Improving Memory in Menopause: the IMPRES Study

Posted in: Research , Menopause
Tags: Hereditary Cancer Research, Menopause, Risk-reducing Salpingo-oophorectomy

Where's FORCE?

October 07, 2019

Where's FORCE?

Posted in: FORCE And FORCE Impact
Tags: Hereditary Cancer, Hereditary Cancer Research, Ovarian Cancer, HBOC, Cancer Advocacy

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