Advocacy Day 2022

On June 16th, 80 passionate advocates met virtually with Members of Congress to educate them about important issues affecting our community.

About Advocacy Day

Advocacy Day is an opportunity for you and other passionate people to meet virtually with members of Congress urging them to support policies that improve the lives of individuals and families facing hereditary cancers. Our 2022 agenda focused on legislative efforts that facilitate affordable access to care (genetic counseling, testing, screening, preventive interventions and treatments). Reducing barriers to these crucial services saves lives!

Your voice is the most powerful tool for raising awareness on Capitol Hill, and the more we join together to speak out, the greater our impact.


Advocates with interests and concerns about the needs of people with or at risk of hereditary cancer from around the U.S. came together to meet with federal lawmakers or their staff—hereditary cancer survivors, previvors, family members, healthcare professionals and researchers. When possible, they were grouped with a few other advocates from their state or region of the country.

Participants attended an Advocacy Day training to help them prepare. They also received meeting prep materials and more in-depth education regarding the issues and talking points for the appointments. 

For many, it was their first time participating in an advocacy event. Leading up to Advocacy Day, we reviewed our unified message and the legislation for which we advocated. We also taught participants about advocating and how to share their stories in a way that leaves a memorable impression on congressional representatives. The experiences and perspectives of people in our community are important.