FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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Posts Tagged ‘brca’

August 16, 2011

Spirit of Empowerment: A family gives back

At our conference in June, we continued a new tradition by presenting our second Spirit of Empowerment Awards. They recognize the contributions of individuals and organizations that help FORCE support the hereditary breast and ovarian cancer community and allow us to shine the light on individuals and organizations who are making a significant difference for the almost one million people … + read more

July 20, 2011

The critical need for ovarian cancer prevention research

In 2008, FORCE surveyed our community to establish hereditary cancer research priorities. One of the top four priorities was the development of new cancer prevention options. An important step in designing research is determining whether there is a need and whether or not the target population would enroll in the study.  We conducted a survey … + read more

July 12, 2011

Prioritizing research for metastatic hereditary cancer

There is a need for more treatment options for hereditary cancer, and the need is dire for women with metastatic hereditary breast cancer who make up a small subset of the larger breast cancer population. To better understand advanced hereditary breast cancer and to advocate for more research and better treatment options, FORCE conducted a … + read more

July 6, 2011

Keeping the lights on

Announcing the appointment of Barbara Pfeiffer as our new pro bono CEO at the opening session led to a great buzz during our conference. We’ve been barraged with questions ever since. Many people anxiously approached me to find out if I am ill and if I am okay with the change. I know that in … + read more

June 30, 2011

Why we need a hereditary cancer research fund

One of my favorite moments of the FORCE conference was having the honor to announce the FORCE Hereditary Cancer Research Fund. Below are some highlights from my presentations that mention this new and important FORCE initiative.   “Awareness and advocacy lay the groundwork for building our community and making sure that the needs of our group … + read more

April 25, 2011

A Prescription for Health: Taking Time for Exercise

At age 48, more than a decade after being treated for cancer and enduring chemotherapy and early menopause, I’m amazed to find myself in the best shape in my life. So many of us go to exhaustive lengths to explore and pursue options for cancer risk-management—we make multiple doctor appointments, undergo intense screening, and sometimes … + read more

April 16, 2011

Step-by-step: My kick-off talk for the Relay-for-Life

It’s an honor to be here today.  I was a practicing veterinarian in South Florida when I was diagnosed with breast cancer at age 33. At a time when I should have been enjoying my veterinary career, my husband, and my young toddler, I was diagnosed out of the blue. I was told it was … + read more

September 30, 2010

What a difference a decade makes

by Sue Friedman I watched CSPAN with a sense of pride and awe as the House of Representatives voted on and passed HR 1522, designating National HBOC Week and Previvor Day. It is a day that has been 11 years in the making. It has been a long, exciting, sometimes frustrating and (now) gratifying journey … + read more

August 19, 2008

Try Walking in Our Shoes

I highly recommend In the Family for anyone who is interested in the issues facing our community. The “BRAC-umentary” by Joanna Rudnick of Kartemquin Films premiered at our 2008 annual conference and will air October 1 on PBS. In addition there are many planned community screenings of the film across the country. In 80 minutes, Joanna, … + read more

July 31, 2008

Genetic Testing: Finding The Right Specialist Can Make A Difference

On a daily basis, we are hearing alarming stories about people having BRCA genetic testing under less-than-ideal situations. Increasingly, people are being offered inappropriate testing and are receiving their test results unaccompanied by proper information about their risk for cancer or their risk-management options. In general, these stories involve individuals who are tested at a … + read more

July 24, 2008

Helping Hereditary Cancer Research: Participating in Research Studies

People frequently ask me what can be done to promote hereditary cancer research. Given the fact that our population is relatively small, and there are few research studies specifically for our community, connecting willing and eligible participants to open research studies is a critical piece of the work FORCE does to support research. If researchers … + read more

July 20, 2008

Why a FORCE blog?

Information about genetics is exploding in more ways than one.  Let me explain: almost daily we are bombarded with new articles about discoveries in the field of genetics.  Many of these discoveries are exciting and relevant for our community.  But other discoveries (although groundbreaking) may have little significance for us or others in our community.  … + read more

Connect with others.

Call our Helpline

Our helpline offers peer support for people concerned about hereditary cancer. All calls are confidential. Call any time.

Join a Local Group

FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.

FORCE:Facing Our Risk of Cancer Empowered