Advocacy

FORCE advocates for families facing hereditary breast and ovarian cancer in areas such as access to care, research funding, insurance, and privacy.

Advocacy > Advocacy Issues


Newsflash

6/27/2019
We played a lead role in drafting coalition comments on the FDA's proposed mammography guideline updates.

6/21/2019
FORCE recommendations regarding genomics were accepted and will be integrated into the Healthy People 2030 objectives.

6/3/2019
Today, the FDA announced a new pilot program called Project Facilitate to assist oncologists in requesting access to unapproved therapies for cancer patients. 

5/7/2019
We signed onto coalition letters to the House and Senate regarding FY20 funding for the Defense Health Research programs. 

4/8/2019
FORCE submitted a letter of support for TX legislation that would mandate coverage of fertility preservation prior to cancer-related surgery or treatment.

Hereditary Cancer Awareness

FORCE has strived to raise awareness about hereditary breast and ovarian cancers (HBOC) since its inception in 1999. Over the years, this has included local, state and federal initiatives aimed at increasing public knowledge about the hereditary aspects of certain cancers, recognizing people affected by these cancers, and representing the HBOC community in the broader cancer community.

Genetic Testing & Counseling

Medicare Issues Take Forefront

Fraud Alert!
Are you a Medicare beneficiary considering genetic testing? See this recent fraud alert issued by the Office of Inspector General and learn how you can protect yourself from misinformation and harm.

Access to Genetic Counseling
Genetic counselors provide crucial information and expertise to anyone impacted by hereditary cancer. But, did you know that these experts are not approved Medicare practitioners? The “Access to Genetic Counselor Services Act of 2019” (H.R. 3235) aims to remedy this issue. Join FORCE in supporting coverage of genetic counseling for Medicare beneficiaries and expanded access to genetic counseling services for all Americans.

Genetic Testing & Counseling

ALERT:
Buyers Beware. Cancer Genetic Testing Should Be Performed in the Health Care Setting.

There is a flood of information available about genetic tests for cancer risk in the media, and even at community events, such as health fairs and senior centers. Genetic testing can provide important, life-saving information when done in the right way. If these promotions have caught your attention and you are considering DNA/genetic testing, there is important information that you should know to protect yourself from misinformation and potential harm.

Insurance Coverage & Barriers

Statement Sets the Record Straight on AHCA and HR 1313

May 2017 - Recent events related to proposed changes in health care and genetic privacy laws have spurred concern and uncertainty in the hereditary cancer community. Some media stories have disseminated inaccurate information, which has intensified people’s unease. We prepared this briefing to dispel misinformation and allay some of the fears that have been expressed. This statement aims to answer questions and clarify information regarding HR 1313, employer-based wellness programs, and GINA. It also explains where things stand with repeal and replacement of the ACA, and clarifies what may be considered a pre-existing condition. 

Hereditary Cancer Awareness

EARLY Act Brings Young Breast Cancer to Forefront

The Breast Cancer Education and Awareness Requires Learning Young (EARLY) Act authorizes a nationwide breast cancer awareness and support campaign for women age 45 and under, including high-risk women, breast cancer survivors, and their doctors. The law also includes broad-reaching public and healthcare professional education campaigns, prevention research, and additional support for young women diagnosed with breast cancer. 

Hereditary Cancer Awareness

Establishment of National HBOC Week and Previvor Day

FORCE made history in 2010 with the successful passage of a Congressional resolution declaring the first-ever National Hereditary Breast and Ovarian Cancer (HBOC) Week and National Previvor Day. FORCE spearheaded this effort to raise awareness and highlight the impact of these hereditary cancers. 

Search Policy Issues by Keyword

FORCE:Facing Our Risk of Cancer Empowered