Stay up to date on research and information
Sign Up for FORCE NewslettersPolicy Archive
Support Broader Access to Genetic Counseling
January 2023 - With the start of a new congress, all legislation that didn't pass last year needs to be reintroduced. Stay tuned for updates on this legislation in the coming months...
Genetic counselors provide crucial information and expertise to anyone impacted by hereditary cancer. But, did you know that these knowledgeable providers are not approved Medicare practitioners? The Access to Genetic Counselor Services Act (H.R. 2144/S. 1450) aims to remedy this issue. Join FORCE and the National Society of Genetic Counselors to support coverage of genetic counseling for Medicare beneficiaries and expanded access to genetic counseling services.
Genetic testing is an increasingly important and complex service that improves health care by enabling informed medical decisions. Genetic counselors are professionals with advanced training in medical genetics and counseling to interpret genetic test results, and to guide and support patients, their families, and their healthcare team(s). Unfortunately, current Medicare policy restricts access to these highly trained providers who can optimize the benefits of genetic testing.
Many private health plans and state Medicaid programs look to Medicare for guidance on what health services should be covered. As such, this legislation is also likely to improve access and coverage of genetic counseling beyond Medicare.
Contact your elected officials and let them know why access to genetic counseling is important!
News Briefs
9/9/2024 - Signed on to a comment letter encouraging coverage of computed tomography colonography (CTC) procedures and follow-up colonoscopies in the proposed Medicare and Medicaid Program 2025 Physician Fee Schedule (PFS) rule.
8/2/2024 - Responded to an RFI from Representatives DeGette and Bucshon, providing input on the successes, gaps and unmet needs in the 21st Century Cures and CURES 2.0 initiatives, suggesting components for future efforts.
7/16/2024 - Supported a statement expressing concern about the Supreme Court’s decision to eliminate the Chevron doctrine deference precedent and the impact the decision may have on those affected by colorectal and other cancers.
Related Resources
- Visit the How to Get Testing section of our website for criteria for genetic testing and information on finding a cancer genetics expert.
- FORCE's toll-free helpline: 866-288-RISK, ext. 704, can connect you with a volunteer board-certified genetic counselor who can answer general questions about genetic testing and hereditary cancer and help you find a genetic counselor near you.
- FORCE Peer Navigator Program will match you with a volunteer who has undergone genetic counseling and can help you navigate resources to find a genetic counselor near you.