Advocacy News Briefs

News Brief Archive

2025

11/14/2025 - Signed on to a letter to the Colorado Division of Insurance regarding implementation of the biomarker testing coverage required under the laws passed last year, encouraging revised medical necessity language to “is medically necessary as determined by the medical and scientific evidence defined in the statute”.

11/4/2025 - Joined 450 organizations in urging Congress to immediately act on a long-term telehealth fix in its next legislative package to ensure stability and provide clarity for patients, providers, and the healthcare system.

10/20/2025 - Joined the Alliance for Breast Cancer Policy in a letter to committee leadership in support of the Access to Breast Cancer Diagnosis (ABCD) Act, bipartisan legislation that would remove financial barriers for medically necessary supplemental and diagnostic breast imaging

10/16/2025 - Aligned with orgs representing patients, workers, small businesses, healthcare providers, and other stakeholders urging Congress to permanently extend the premium tax credits for health plans to prevent health coverage from becoming out of reach for millions of Americans.  

10/10/2025 - Endorsed the Specialty Physicians Advancing Rural Care (SPARC) Act, bipartisan legislation establishing a new loan repayment program to incentivize specialists to practice in rural areas and expand access for millions of Americans who lack nearby specialty physicians.

9/22/2025 - Wrote congressional appropriations committee leadership to express support for the Joint Associations Group on Indirect Costs effort to develop a new, more transparent model for ensuring that institutions’ essential research costs are adequately supported, urging inclusion in FY2026 appropriations bills.

8/11/2025 - Joined 350 stakeholder orgs in a letter to congressional leadership expressing concern about expiration of Medicare telehealth services, urging them to make Medicare telehealth access permanent or extending coverage of these services for at least another two years.

8/6/2025 - Aligned with colorectal cancer advocacy orgs in a letter to Secretary of Health and Human Services Robert F. Kennedy, Jr. in support of preserving the independence, scientific rigor, and nonpartisan mission of the U.S. Preventive Services Task Force (USPSTF).

7/9/2025 - Urged Congressional leaders to protect the integrity of the U.S. Preventive Services Task Force (USPSTF)  and evidence-based preventive care by taking measures to maintain its integrity, objectivity, effectiveness, and public trust.

7/8/2025 - Aligned with other national patient advocacy orgs in a letter to CMS Administrator Dr. Oz, asking him to prioritize patient access and engagement in implementation of the Medicare Drug Price Negotiation Program (MDPNP). 

6/9/2025 - Joined stakeholders in a letter to CMS Administrator Dr. Oz, expressing concern about expanded use of utilization management (UM) tools, asking that steps be taken to better protect beneficiaries by improving transparency and instituting additional guardrails to ensure that they have appropriate and timely access to treatment.

6/5/2025 - Wrote Congressional Appropriations Committee leadership expressing alarm re: $18 billion in proposed cuts to NIH in the FY26 budget. We encouraged continued investment in this crucial research agency and public engagement in any restructuring efforts.

5/27/2025 - Wrote sponsors of the Patent Eligibility Restoration Act, to oppose this legislation, which would overturn established Supreme Court precedent and expand patent-eligible subject matter to encompass abstract ideas, laws of nature, and natural phenomena.

5/9/2025 - Petitioned House and Senate Appropriations Committee Chairs urging them to restore and protect robust funding for women’s health research, including the ways conditions manifest differently in women and men, and the ways women and men respond differently to treatments.

5/5/2025 - Joined other patient advocacy orgs in urging Congressional leaders to prioritize patient and caregiver perspectives and input when considering legislation to address access and affordability issues of potentially life-saving treatments.

4/21/2025 - Signed on to a statement to the U.S. Supreme Court, encouraging it to uphold the ACA’s coverage of preventive screenings with no patient cost-sharing, warning that eliminating them would have devastating consequences for access to colorectal cancer and other crucial screenings, and the health of millions of Americans.

4/7/2025 - Joined the Ad Hoc Group for Medical Research and over 500 organizations in recommending at least $51.303 billion for NIH for FY2026, in addition to support for the Advanced Research Projects Agency for Health, representing a 9% increase over the final FY2025 funding level.

03/26/2025 - Urged the Senate to protect Medicaid and other critical healthcare programs as it considers the budget reconciliation and potential program cuts.

03/17/2025 - Encouraged congressional leadership to prioritize patient-centered engagement as it crafts healthcare policies in the 119th Congress and ensure that patients don't face unintended consequences due to health policy changes

02/25/2025 - Called on Congress to prioritize robust funding for the National Institutes of Health (NIH) in the FY2025 appropriations bill and to preserve protections against reimbursement cuts for NIH grantee Facilities and Administrative costs. 

02/24/2025 - Joined hundreds of orgs in thanking lawmakers for advancing the availability of healthcare through telehealth and asking congressional leaders to establish permanent or long-term telehealth access.

01/30/2025 - Urged the President to recognize March 2025 as National Colorectal Cancer Awareness Month and to light the White House blue to honor those we have lost and those fighting this disease.

01/03/2025 - Joined Families USA and hundreds of organizations in a letter urging Congress to protect, preserve, and strengthen Medicaid, a foundational source of health and economic security for 80 million Americans.