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Statement Sets the Record Straight on AHCA and HR 1313
May 2017 - Recent events related to proposed changes in health care and genetic privacy laws have spurred concern and uncertainty in the hereditary cancer community. Some media stories have disseminated inaccurate information, which has intensified people's unease. We prepared this briefing to dispel some of the misinformation and allay some of the fears that have been expressed by members of our community.
This statement aims to answer questions and clarify information regarding the Preserving Employee Wellness Programs Act (HR 1313), employer-based wellness programs, and the Genetic Information Nondiscrimination Act (GINA). It also explains where things stand with repeal and replacement of the Affordable Care Act (ACA), and clarifies what may be considered a pre-existing condition. We encourage you to share this with friends and family in the hereditary cancer community. Please check back regularly for updates as policies on these and other issues are considered.
News Briefs
11/18/2024 - Thanked U.S. Reps Ruiz and Bucshon for introducing H.R. 8412, the Clinical Trial Modernization Act, and to express our support for this important legislation.
11/18/2024 - Joined nearly 400 members of the Ad Hoc Group for Medical Research in encouraging House Appropriations Committee leadership to finalize the Labor-HHS spending bill with a $48.9 billion investment in the NIH, in addition to funding for the Advanced Research Projects Agency for Health (ARPA-H).
10/7/2024 - Urged congressional leadership to swiftly pass the SCREENS for Cancer Act, which would reauthorize the National Breast and Cervical Cancer Early Detection Program (NBCCEDP) for another five years.
Related Resources
- Informational GINA flyer
- Genetic Information Nondiscrimination Act website provides an introduction to the GINA law and its health insurance and employment protections. It includes answers to common questions about GINA.