FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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Posts Tagged ‘patient advocacy’

August 9, 2019

Be Your Own Health Advocate! If Your Doctor Isn’t Asking You These Questions, Ask Them Yourself

All medical decisions come with tradeoffs, and people weigh risks and benefits differently. In the hereditary cancer community, we are constantly weighing our choices. These questions can bring our own goals into focus and can then be shared with our care team. Thinking about your goals, priorities and what matters to you most can help you make treatment decisions that are right for you.

August 17, 2017

Working with Industry to Increase Patient Engagement in Drug Development

by Lisa Schlager Historically, the only role for patients in cancer research was as a subject enrolled in a clinical trial. Research generally focused exclusively on outcomes such as overall survival and neglected to account for variables such as side effects and quality of life. Engaging patients as advisors in research—reviewing study design, informed consent … + read more

May 11, 2017

Fueling Patient-Focused Health Care

by Melanie Nix I know a woman who has hereditary breast and ovarian cancer (HBOC) syndrome. She is a triple negative breast cancer survivor. She has a BRCA1 gene mutation and is the fifth generation in her family to have breast cancer. She lost her youngest aunt to ovarian cancer after multiple battles with both … + read more

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Call our Helpline

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FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.

FORCE:Facing Our Risk of Cancer Empowered