FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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Posts Tagged ‘hereditary cancer research’

July 9, 2020

Advocacy Through Writing and Research

Bryna Siegel Finer, PhD As an academic researcher, I am currently recruiting survey and interview participants for two new studies. The first looks at how patient education materials describing chemotherapy can better equip patients to understand how their bodies might be different after chemo. I invite you to take the survey and tell us what … + read more

October 7, 2019

Where’s FORCE?

by Lisa Schlager This issue of “Where’s FORCE?” features an overview of the many events in which FORCE staff and volunteers participated in recent months. May Supporting those affected by cancer is collaborative effort. The Cancer Community (C2) Awards honor a diverse and indispensable group, the unsung heroes of cancer care. This year, FORCE Executive … + read more

May 2, 2019

Improving Memory in Menopause: the IMPRES Study

By Joanna Marks Ask any woman who has undergone a risk-reducing salpingo oophorectomy (RRSO) about recovery and you will hear about both the physical and emotional challenges of this process. If ovaries are removed prior to a woman’s natural menopause transition, she will likely enter premature menopause. For many women, cognitive complaints (like difficulty concentrating … + read more

February 22, 2019

FORCE and Other Groups Meet with the Centers for Medicare and Medicaid Services (CMS)

by Lisa Schlager   In 2018, Medicare issued a National Coverage Determination (NCD) that added coverage of tumor testing for people with advanced cancer. Tumor testing can help those with advanced cancers choose treatment options. While the decision increases access to tumor testing, under some circumstances the policy will restrict access to genetic testing for … + read more

November 26, 2018

I am Thankful for YOU This Holiday Season

By Marcy Rubic, VP of Leadership Gifts What are you thankful for this season?  At FORCE, we are thankful for our generous supporters. Because of YOUR dedication and support, FORCE helps tens of thousands of families affected by hereditary cancer each year and makes lifesaving resources available to so many more. Every person who is … + read more

November 3, 2018

XRAYS Blog: Sharsheret Webinar Helps People Make Sense of Breaking News in Breast and Ovarian Cancer

by Elaine Gottesman Sharsheret is one of the partner organization for FORCE’s XRAYS Program. Sharsheret’s webinar, “Breaking News In Breast And Ovarian Cancer And What Should I Make Of It?” recapped some of the key takeaways from the 2018 American Society of Clinical Oncology’s Annual Meeting. Featuring Dr. Deanna Attai, of UCLA Health Burbank Breast … + read more

May 30, 2018

Where’s FORCE? March and April

by Lisa Schlager “Where’s FORCE” highlights the ongoing efforts of FORCE staff and volunteers on behalf of the community. March As a member of the Bayer Oncology Patient Advocacy Advisory Council (PAAC), FORCE Vice President of Public Policy Lisa Schlager joined representatives from other advocacy groups and Bayer to review project proposals submitted by nonprofit … + read more

October 23, 2017

No Longer Alone: 1000 People Benefit from Personalized Cancer Risk Support

by Sandy Cohen Unfortunately, my story is not that uncommon. I’m a motherless daughter. I lost my mom to breast cancer when I was 26 years old. And she lost her mom to the disease before she graduated high school. This all occurred before the BRCA1 mutation was even discovered. Today, thanks to FORCE’s programs, … + read more

September 20, 2017

WISDOM Study: Investigating a Personalized Approach to Breast Cancer Screening

by Laura Esserman, MD Breast cancer screening today: A groundbreaking breast cancer screening study is underway in California and you may be eligible to be a part of it.  It’s called the Wisdom Study.  The aim is to determine if we can make screening better by personalizing each woman’s mammogram schedule, compared to the current … + read more

August 17, 2017

Working with Industry to Increase Patient Engagement in Drug Development

by Lisa Schlager Historically, the only role for patients in cancer research was as a subject enrolled in a clinical trial. Research generally focused exclusively on outcomes such as overall survival and neglected to account for variables such as side effects and quality of life. Engaging patients as advisors in research—reviewing study design, informed consent … + read more

January 26, 2017

Flawed Research and Reporting on the “Angelina Effect” Could Threaten Access to HBOC Care

by Lisa Schlager, Lisa Rezende, PhD and Sue Friedman “Angelina Effect” Angelina Jolie’s May 2013 New York Times editorial “My Medical Choice,” which detailed her decision to have a double mastectomy because she carries a BRCA1 mutation brought unprecedented attention to hereditary cancer and BRCA genetic testing. This “Angelina Effect” created an avalanche of public … + read more

August 24, 2015

XRAYS Program Looks Behind the Headlines to Make Sense of Cancer Research

FORCE is proud to launch our new program, eXamining the Relevance of Articles for Young Survivors (XRAYS). Funded by the Centers for Disease Control (CDC), the XRAYS program was developed to meet a growing need as more and more medical research articles on breast cancer are making the headlines. With the rise of social media, more consumers are turning … + read more

March 22, 2013

Gene Discovery, Patents, and the Community

Recently a dear friend sent me a link to an article in the February 1996 issue of Nature Medicine. The article by journalist Adam Marcus covered a media event and panel of women’s rights advocates expressing concern about Myriad’s impending patenting of the BRCA1 gene. Panelists declared unregulated genetic testing to be the coming century’s … + read more

February 24, 2013

Hopeful Progress in Ovarian Cancer Prevention Research

In 2008 FORCE conducted a survey to learn about research priorities for the HBOC community. We learned that women want better methods for ovarian cancer detection and prevention for ourselves, our children, and future generations. For this reason, we have worked closely with researchers exploring new options and we have carefully followed and shared with … + read more

January 17, 2013

Drawing Attention To High-risk Screening

Reports are everywhere in the media about which celebrities underwent prophylactic mastectomy, the difficulty of their decision, and why these women made the choice. These media reports can be helpful to our community as they raise awareness of hereditary cancer risk and risk-management and remove the stigma of mastectomy. However, given the media focus on … + read more

Connect with others.

Call our Helpline

Our helpline offers peer support for people concerned about hereditary cancer. All calls are confidential. Call any time.

Join a Local Group

FORCE has outreach groups throughout the United States and in Essex, United Kingdom that meet periodically to offer peer support, and share resources.

FORCE:Facing Our Risk of Cancer Empowered