People diagnosed with Lynch syndrome have an increased risk for colorectal, endometrial and other cancers. Options are available for cancer treatment, screening and prevention for people with Lynch syndrome.
If you have been diagnosed with Lynch syndrome, you have may questions about your medical care. This page has information on cancer risk, screening, prevention and treatment for people with an inherited mutation in a Lynch syndrome gene.
We've compiled expert-reviewed resources to help you take steps to protect your own health and the health of your relatives. Click on each topic below to learn more. If you need additional guidance, please sign up for our Peer Navigation Program. You are not alone.
Cancer treatment and fertility preservation
Assisted reproductive technology (ART)
Preimplantation genetic diagnosis (PGD)
Paying for fertility care and assisted reproductive technology
Webinar: Fertility and Parenting Issues for Survivors and Previvors
Webinar: Exploring Your Family Planning Options through Assisted Reproduction
Video: Concerns About Safety of COVID-19 Vaccines for People with Mutations
XRAY review : COVID boosters: What people with cancer should know
XRAY review: COVID vaccines for people with cancer
XRAY review: COVID-19 and cancer
Webinar: Information about COVID-19 for people with, or at high risk for colorectal cancer
Patient Protection & Affordable Care Act (ACA)
Genetic Information Nondiscrimination Act (GINA)
GINA protections against health insurance discrimination
GINA protections against discrimination in employment and wellness programs
Health Insurance Portability and Accountability Act (HIPAA)
Webinar: Navigating Insurance Challenges with an Inherited Mutation
Attend a support meeting or event
Join one of our Zoom community group meeting:
- Caregivers
- LGBTQIA
- Men
- Meetings in American Sign Language
- Meetings in Spanish
- People of Color
- Previvors
- Young Previvors
- Survivors
- Young Survivors
Participate on our message boards
Read stories submitted by people with Lynch syndrome.
Watch our video by members with Lynch syndrome.
We offer a variety of options for support from trained volunteers and community members. Virtual and in-person support meetings, community forums and peer navigators assure that you are not alone.
These resources can help you prepare to communicate about your health history or genetic test results with relatives.
Learn about the laws that protect you from harm and improve your access to health care.
We provide resources and information to help keep you and your family safe from COVID-19.
We provide information and resources for managing the symptoms and effects of menopause with and without hormones.
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