Lynch Syndrome

Lynch syndrome is a condition that causes cancer to run in families. People with Lynch syndrome have an increased risk for colorectal, endometrial and other cancers. About 1 in 300 people have Lynch syndrome and most are unaware of their risks.

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Lynch Syndrome

Lynch syndrome is a genetic condition that increases the risk for colorectal, endometrial and other cancers, and causes these cancers to run in families. Lynch syndrome  is caused by a mutation in one of five related genes, MLH1, MSH2, MSH6, PMS2 and EPCAM. A genetic test can help people learn if they have an inherited mutation in a Lynch syndrome gene. If you have been diagnosed with Lynch syndrome or you want to learn more about it, this page has information on cancer risk, screening, prevention and treatment for people with an inherited mutation linked to Lynch syndrome. 

We've compiled expert-reviewed resources to help you take steps to protect your own health and the health of your relatives. Click on each topic below to learn more. If you need additional guidance, please sign up for our Peer Navigation ProgramYou are not alone.

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After Testing, Now What?
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Lynch Syndrome Cancer Risks
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Screening and Prevention Guidelines
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Colorectal Cancer Screening & Prevention
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Endometrial Cancer Screening & Prevention
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Ovarian Cancer Risk Reduction
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Colorectal Cancer Treatment
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Endometrial Cancer Treatment
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Fertility and Family Planning
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Other Resources
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Paying for Care
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Wellbeing and Survivorship
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We offer a variety of options for support from trained volunteers and community members. Virtual and in-person support meetings, community forums and peer navigators assure that you are not alone.


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Sharing Information with Family

These resources can help you prepare to communicate about your health history or genetic test results with relatives.


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Legal Protections

Learn about the laws that protect you from harm and improve your access to health care.


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We provide resources and information to help keep you and your family safe from COVID-19.


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Managing Menopause

We provide information and resources for managing the symptoms and effects of menopause with and without hormones.


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