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I've Tested Positive, Now What?

This page provides important information and resources for men and women who have tested positive for an inherited mutation linked to cancer.
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Genetic Testing

I've Tested Positive, Now What?

Women with Mutations

Men with Mutations

Lynch Syndrome

Colorectal Cancer

Ovarian Cancer

Breast Cancer

Pancreatic Cancer

Prostate Cancer

Endometrial Cancer

Biomarker Testing

Information for Healthcare Professionals

Information for Researchers

Managing Menopause

Family History and Outreach

Resources to Address Health Disparities

LGBTQIA+ and Cancer

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People with an Inherited Gene Mutation

If you are a man or woman with Lynch syndrome or an inherited mutation in BRCA1, BRCA2, ATM, CHEK2, PALB or another gene linked to hereditary cancer, this page has links to information, research and resources for you.  

We've compiled expert-reviewed resources to help you make informed decisions about your care. Click on each topic below to learn more. If you need additional guidance, please sign up for our Peer Navigation Program. You are not alone.

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After Testing, Now What?

Making sense of genetic test results

Finding a genetic counselor

Information about your gene mutation

Assembling your healthcare team

Making medical decisions about risk

Video: ABCs of Cancer Genetics

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Hereditary Cancer Treatment

Treatment options by cancer type

Treatment options by treatment type

Treatment options by mutation

Biomarker testing

Paying for treatment

Video: What’s New in Hereditary Breast, Ovarian, Pancreatic and Prostate Cancer 

Video: What's New in Hereditary Cancer - Lynch Syndrome 

Video: Biomarkers and Liquid Biopsies

Video: What are Targeted Therapies and Immunotherapies? 

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Cancer Risks and Management by Gene Mutation

Cancer screening and risk reduction overview

Cancer risks and guidelines for your gene mutation

Video: Cancer Risks, Screening and Prevention for People with BRCA1 or BRCA2 Mutations

Video: Cancer Risks, Screening and Prevention for People with ATM, CHEK2, PALB2 and Other Genes

Video: Cancer Risks, Screening and Prevention for People with Lynch Syndrome  

Video: How Do I Decide? Finding Clarity in Decision-Making

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Cancer Risks and Management by Cancer Type

Cancer screening and risk reduction overview

Gene mutations linked to different types of cancer

Risk management guidelines for different types of cancer

Video: Colorectal Cancer Screening and Prevention in High-Risk Individuals

Video: What's New in Gynecologic Cancer Screening and Prevention?

Video: What's New in Pancreatic Cancer Screening and Prevention?

Paying for risk management services

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Surgery to Reduce Risk

Mastectomy

Reconstruction or going flat

Salpingo-oophorectomy

Hysterectomy 

Colectomy

Paying for risk reducing surgery

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Hereditary Cancer Research

Featured research

Video: Participating in Clinical Trials for People with Inherited Mutations: Why, When and How

Video: Strategies for Cancer Interception and Prevention in Individuals with Hereditary Cancer Syndromes

How to search for research studies

Search for screening & prevention studies  

Search for treatment studies

Search for quality of life studies

Your rights as a participant

Reviews of cancer research results

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Fertility and Family Planning

Cancer treatment and fertility preservation

Assisted reproductive technology (ART)

Preimplantation genetic diagnosis (PGD)

Pregnancy after cancer

Adoption after cancer

Paying for fertility care & assisted reproductive technology

Video: Fertility and Parenting Issues for Survivors and Previvors

Video: Exploring Your Family Planning Options Through Assisted Reproduction

XRAY reviews of research related to pregnancy and fertility

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Wellbeing and Survivorship

Nutrition, exercise and weight

Emotional wellbeing

Sexual health and intimacy

Palliative and integrative care

Survivorship

 Video: Treatment Side Effects: Cancer Survivorship

 Video: Diet and Nutrition 

 Video: Complementary and Integrative Medicine

Video This My New Normal? Navigating Life Detours Due to Risk Management or Treatment

 Video: Sexuality and Intimacy Issues for Women

 Video: Sexuality and Intimacy Issues for Men

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Managing Menopause

Menopause symptoms

Managing menopause without hormones 

Managing menopause with hormones

Find a menopause expert

 Video: Menopause Management without Hormones

Video: Early Onset Menopause Management with Hormones 

Video: Menopause Q & A Panel 

XRAY reviews of research on menopause

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Support

We offer a variety of options for support from trained volunteers and community members. Virtual and in-person support meetings, community forums and peer navigators assure that you are not alone.

LEARN MORE

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Sharing Information with Family

These resources can help you prepare to communicate about your health history or genetic test results with relatives.

LEARN MORE

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Legal Protections

Learn about the laws that protect you from harm and improve your access to health care.

LEARN MORE

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COVID-19

We provide resources and information to help keep you and your family safe from COVID-19.

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Managing Menopause

We provide information and resources for managing the symptoms and effects of menopause with and without hormones.

LEARN MORE