I've Tested Positive, Now What?
Genetic testing for an inherited gene mutation linked to colorectal cancer can help people with or without colorectal cancer make medical decisions, protect their own health and the health of their relatives.
We've compiled expert-reviewed resources to help you understand your risk and your medical options for preventing or treating colorectal cancer and take steps to protect your health and the health of your relatives. Click on each topic below to learn more. If you need additional guidance, please sign up for our Peer Navigation Program. You are not alone.
Types of colorectal cancer screening
Screening for people at high risk
Screening for people at average risk
Video: Cancer Risks, Screening and Prevention for People with Lynch Syndrome
Video: Colorectal cancer screening and prevention in high-risk individuals
Video: Bypassing Barriers to Colorectal Screening and Genetic Testing for You and Your Family
Biomarkers, targeted and immunotherapies
DNA damage repair and cancer treatment
Mismatch repair and MSI-high cancers
Video: What's New in Colorectal Cancer Treatment?
Video: What's New in Hereditary Cancer - Lynch Syndrome?
Video: Biomarkers and Liquid Biopsies
Video: Participating in Clinical Trials for People with Inherited Mutations: Why, When and How
Search for treatment clinical trials
Search for screening and prevention clinical trials
Search for quality of life studies
Nutrition, exercise and weight
Palliative and integrative care
Video: Sexuality and Intimacy Issues for Men
Video: Sexuality and Intimacy Issues for Women
Video: Treatment Side Effects & Survivorship
Video: Complementary and Integrative Medicine
Video: How palliative care can help people at any stage of diagnosis
Collecting and sharing health information
Sharing genetic test results with adult relatives
Brochure: The Genes Between Us
Video: Sharing Information with Children
Worksheet: Sharing with Family
Sharing information with children
Portal: Family History and Genealogy
Find local support or attend a video support meeting
Join one of our Zoom community group meeting:
- Meetings in American Sign Language
- Meetings in Spanish
- People of Color
- Young Previvors
- Young Survivors
Patient Protection & Affordable Care Act (ACA)
Genetic Information Nondiscrimination Act (GINA)
GINA protections against health insurance discrimination
GINA protections against discrimination in employment & wellness programs
Health Insurance Portability & Accountability Act (HIPAA)
Video: Navigating Insurance Challenges When You Have a Hereditary Genetic Mutation
We offer a variety of options for support from trained volunteers and community members. Virtual and in-person support meetings, community forums and peer navigators assure that you are not alone.
These resources can help you prepare to communicate about your health history or genetic test results with relatives.
Learn about the laws that protect you from harm and improve your access to health care.
We provide resources and information to help keep you and your family safe from COVID-19.