Hereditary Cancer and Genetic Testing

Medical decisions for people with an inherited NBN mutation who have been diagnosed with cancer

Currently there are no cancer treatments approved specifically for people with a NBN mutation, nor guidelines for treating cancer specifically for people with a NBN mutation. To learn more about standard of care treatment options for specific types of cancer, visit our section on Cancer Treatment by Cancer Type. You may also consider enrolling in a clinical trial studying which treatments work best for people with an inherited NBN mutation. 


If you are a person with an NBN mutation, you can find peer support through the following resources:


The majority of public and private health insurance plans are required to cover cancer diagnosis and treatment; copays, coinsurance and deductibles often apply. Patient costs and coverage for specific doctors, facilities or treatments may vary based on your health plan. If your insurance company denies your claim, your health care provider can help you write an appeal letter, or you can use one of our sample appeal letters. Visit our section on Insurance and Paying for Care: Treatment for more information.


The following cancer treatment studies are open to people with an NBN mutation. 

Advanced solid tumors of any type 

Breast cancer

Prostate cancer 

Visit our Research Search and Enroll Tool to find additional cancer treatment studies. 

Last updated September 04, 2021