FORCE Blog

This blog will cover topics of interest that affect our community. Unless otherwise stated, the blog articles will be written by Sue Friedman, Executive Director of FORCE.

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Posts Tagged ‘FORCE’

April 11, 2019

Devin Sidell’s Lady Parts The Film

Devin Sidell is an actress and a previvor who is sharing her story in an upcoming dark comedy feature film called Lady Parts in order to bring more awareness and normalization to BRCA-positive women undergoing preventative surgeries. “I am an actress, an artist, a storyteller. Yet, I had never thought about turning my own story into art … + read more

April 1, 2019

Update: FDA Meeting on Breast Implant Safety

by Lisa Schlager Breast implant safety is a hot topic. We recently published an XRAYS review that shed some light on the importance of well-designed research and reliable information about breast implants. Last week, I attended and made public remarks at a 2-day meeting on breast implants hosted by the U.S. Food and Drug Administration … + read more

March 8, 2019

XRAYS Blog – A Deep Dive into Disparities: The Challenges and Opportunities of Reaching Out to the Underserved

By Amy Wu I recently had the privilege of spending two days at a brainstorming session with a group of doctors, scientists, researchers, advocates and fellow survivors (myself included), all of us a sounding board for the California Breast Cancer Research Program. The goal was to identify and create research projects on breast cancer. One … + read more

February 22, 2019

FORCE and Other Groups Meet with the Centers for Medicare and Medicaid Services (CMS)

by Lisa Schlager   In 2018, Medicare issued a National Coverage Determination (NCD) that added coverage of tumor testing for people with advanced cancer. Tumor testing can help those with advanced cancers choose treatment options. While the decision increases access to tumor testing, under some circumstances the policy will restrict access to genetic testing for … + read more

February 20, 2019

Celebrating Twenty Years of Support

On New Year’s Day, FORCE celebrated our 20th Anniversary! It is a great milestone, and we have accomplished so much along the way. Over the coming year, we will share articles about key accomplishments in each of our pillars: support, advocacy, research and education. FORCE was founded in 1999 as a support organization. Our first … + read more

January 22, 2019

My BRCA2 Story: Mastectomy Without Reconstruction

by Marla Ruhana In the XRAYS review, Juliet’s story: No reconstruction is a post-mastectomy option, Juliet’s experience resonated with me. My mastectomy journey began in August of 2003, when my sister called and said, “Well, I’m one of the seven percent of women who get breast cancer under the age of 40.” She said that … + read more

January 10, 2019

Book: The Big Discovery

My Family History In 2003, my mother was diagnosed with stage IV metastatic breast cancer and unfortunately lost her four-year battle at the young of age 52. Shortly after my mother’s battle with cancer, my father was diagnosed with prostate cancer at age 53. He elected to have his prostate removed and is currently doing … + read more

January 10, 2019

A 20th Anniversary Message to Sue and to You: Words of Inspiration From FORCE

  Anniversaries are a time to celebrate, reflect, remember years past and to be hopeful for the future. New Year’s is always a nostalgic time for FORCE, as it is for many people, but the upcoming holiday is especially auspicious, because FORCE and our hereditary cancer community will turn 20! After two decades of raising awareness, … + read more

January 8, 2019

Probably Someday Cancer: Genetic Risk and Preventative Mastectomy

I agonized for years over whether to have a double mastectomy after I found out I have a BRCA2 mutation. I couldn’t get past the idea that I would be removing my breasts to reduce my risk of a disease I didn’t have — and may never get. My book, Probably Someday Cancer: Genetic Risk … + read more

May 21, 2018

FORCE Earns 4-Star Rating on Charity Navigator

By Karen Kramer, Senior Vice President of Marketing We have some exciting news to share! Non-profit evaluator Charity Navigator has awarded FORCE our first 4-star rating. This is their highest possible rating and indicates that we exceed industry standards in a financially responsible way. Charity Navigator bases its ratings on non-profits’ financial health and commitment … + read more

April 27, 2018

The Lights of May

Special note: In honor of Mother’s Day 2018, we’re recycling this post that was originally published in 2012. This inspirational post is as relevant as when first written 6 years ago.  by Sue Friedman We were late.  The last hint of twilight faded and although we were close to home, I was nervous.  It was … + read more

February 15, 2017

Guest Blog: Join FORCEs at our 2017 HBOC Conference!

by guest blogger, Jane E. Herman When I boarded the flight for my first trip to Orlando in June 2011, my goal was not to hug Mickey Mouse or visit Cinderella’s Castle. Rather, my destination was the sixth annual Joining FORCEs Conference. Not knowing anyone who would be in attendance, I was – not unexpectedly … + read more

December 15, 2016

Paradigm Shift: A Journalist and Survivor Tackles the New Normal of News

By Amy Wu Caught amidst a tsunami of daily news stories, posts and news alerts – Facebook, Twitter, Buzzfeed, NPR, The New York Times, VICE, CNN, The Guardian and The Washington Post, where do I start? I click, I swipe, scroll and scan. Since the advent of the smartphone and the ease of the wireless … + read more

December 8, 2016

Tips for Sharing the Gift of Knowledge with Relatives

by Sue Friedman Members of our community who have already had genetic testing often ask for advice on how to speak about it to their relatives. Some common barriers to testing that we hear voiced by people are: concern over the cost of testing access to genetics experts family communication challenges With the holidays coming, … + read more

January 8, 2016

Value in Cancer Care: Including Consumers in the Dialogue

by Lisa Schlager, Vice President of Policy and Community Affairs Value and access to appropriate health care is of vital importance to patients and their families, particularly as cancer diagnoses continue to rise—up more than 20 percent in the past decade—and health care costs steadily increase. In this environment, more attention is being paid to … + read more

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FORCE:Facing Our Risk of Cancer Empowered