Thinking about cancer or dealing with cancer risk can be scary or overwhelming, but we believe that receiving information and resources is comforting, empowering, and lifesaving.
The Genetic Information Nondiscrimination Act (GINA) prohibits discrimination by health insurance companies and employers based on “genetic information.” In this case, “genetic information” is defined as: your genetic test results; your relatives’ genetic test results (up to and including fourth degree relatives); and/or information about family history of any disease or disorder. Information about your participation in research that includes genetic testing, counseling, or education is also protected.
It is important to note that GINA does not apply to life, long-term care, or disability insurance. These insurers are permitted to use genetic or health information to make coverage or premium decisions. Some states have passed laws that go beyond the scope of GINA to prohibit genetic discrimination for "other insurances.” U.S. residents are encouraged to explore whether your state provides additional protections.