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Differences in Family Communication about Positive Genetic Test Results Between Asian Americans

Differences in Family Communication about Positive Genetic Test Results Between Asian Americans

Surveys, Registries, Interviews
Interview for Asian Americans with a mutation in BRCA1, BRCA2, ATM, CHEK2, PALB2 or other gene linked to breast or ovarian cancer risk

Study Contact Information:

Student Investigator: Ann Ly
College of Liberal Arts and Sciences at LIU Post
Ann.ly@my.liu.edu
(909)601-5513

Faculty Investigator:  Aman Mann
Northwell Health Cancer Institute
Cancer Genetics
450 Lakeville Road
Lake Success, NY 11042


Differences in Family Communication about Positive Genetic Test Results Between Asian Americans

About the Study

This study aims to explore family communication differences across Asian American families  about testing positive for an inherited mutation in , , , , , , , , , , or another gene linked to hereditary breast and/or ovarian cancer. Participants will complete a 10–15-minute initial intake survey to confirm eligibility. Eligible participants will then be contacted to schedule a 30-45-minute-long interview over Zoom to explore these topics. After completion of the interview, participants will be entered into a raffle for two $50 Visa gift cards. There are no costs associated with participation.

What the Study Involves

You and/or your loved ones are being asked to participate in a student research study investigating differences in family communication about positive genetic testing results for a gene linked to hereditary breast or ovarian cancer between different Asian American ethnic groups, whether it is through a variant in , , or a different gene. ‎
‎ ‎
All participants will complete a 10--15-minute initial intake survey to confirm eligibility. Eligible participants ‎will then be contacted for a voluntary, 30–45-minute interview. ‎

After completion of the interview, you will be entered into a raffle for 2 $50 Visa gift ‎cards. If you would like to participate ‎in the interview, you can access the initial intake survey via this link: https://www.surveymonkey.com/r/SMYWRSN

Lead Researcher

Ann Ly
Long Island University Post Genetic Counseling Graduate Program

This Study is Open To:

You are eligible for this study if you:

  • identify as Asian American,
  • have received genetic testing and learned you have a mutation in one of the following genes:  , , , , , , , , , , , and
  • fill out the initial intake survey by the end of January 2023.
This Study is Not Open To:

You are not eligible if you:

  • do not identify as Asian American.
  • have not ever received a positive genetic testing result for hereditary breast and ovarian cancer syndrome.
  • finish the initial intake survey after January 2023.