Hereditary Cancer and Genetic Testing

Medical decisions for people with an inherited PTEN mutation who have been diagnosed with cancer

Currently there are no cancer treatments approved specifically for people with a PTEN mutation, nor guidelines for treating cancer specifically for people with an inherited PTEN mutation. However, experts are conducting research studies to learn which treatments may work best for people with a PTEN mutation. To learn more about standard of care treatment options for specific types of cancer, visit our section on Cancer Treatment by Cancer Type.

find-support

If you are a person with an inherited PTEN mutation, you can find peer support through the following resources:

Support through other organizations:

paying-for-service

The majority of public and private health insurance plans are required to cover cancer diagnosis and treatment; copays, coinsurance and deductibles often apply. Patient costs and coverage for specific doctors, facilities or treatments may vary based on your health plan. If your insurance company denies your claim, your health care provider can help you write an appeal letter, or you can use one of our sample appeal letters. Visit our section on Insurance and Paying for Care: Treatment for more information.

clinical-trials

The following cancer treatment studies are open to people with an inherited PTEN mutation. 

Solid tumors

Breast cancer

Visit our Research Search and Enroll Tool to find additional cancer treatment studies. 

Last updated September 22, 2021