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Hereditary Cancer and Genetic Testing

Medical decisions for people with an inherited  mutation who have been diagnosed with cancer

Currently there are no cancer treatments approved specifically for people with a mutation, nor guidelines for treating cancer specifically for people with an inherited mutation. However, experts are conducting research studies to learn which treatments may work best for people with a mutation. To learn more about standard of care treatment options for specific types of cancer, visit our section on Cancer Treatment by Cancer Type.

Last updated March 17, 2022

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FORCE offers many peer support programs for people with inherited mutations. 

updated: 08/06/2022

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Paying for cancer treatment

The majority of public and private health insurance plans are required to cover cancer diagnosis and treatment; copays, coinsurance and deductibles often apply. Patient costs and coverage for specific doctors, facilities or treatments may vary based on your health plan. Visit our section on Insurance and Paying for Care: Treatment  for more information, links to sample appeal letters and other resources. 

Some pharmaceutical companies have assistance programs that help cover the cost for their medications: 

Organizations that offer co-pay assistance:

Other resources:

  • The American Cancer Society provides information and resources on covering the cost of cancer care. Public assistance, such as Medicaid may be available if you are ineligible for other programs. 
  • Needy Meds: Assistance programs to help patients with cost of medications and other healthcare.
  • Triage Cancer offers tools and resources to help individuals cope with the financial aspects of a cancer diagnosis.

updated: 01/22/2022

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The following are studies enrolling people with inherited mutations.  

  • NCT04770246: Using TAS-117 to Treat Advanced with Inherited Mutations. This study will look at how well the  TAS-117 works for treating people with an inherited  mutation and advanced or   (excluding primary brain tumors).
  • NCT02401347:  Beyond (TBB) Trial. The goal of the study is to evaluate the anti-cancer activity of (a type of treatment known as a ) in patients with advanced breast cancer with specific genetic mutations based on a blood, saliva, or tumor test. This study is open to people with inherited mutations , , , , , ,  and other genes. 
  • NCT02665195:  Registry Of MultiPlex Testing (PROMPT). PROMPT is an online research registry. The goal of PROMPT is to help researchers to better understand the risks that are linked to mutations in less well-studied genes. 

updated: 03/17/2022