Medical decisions for people with inherited CDH1 mutations who have been diagnosed with cancer
Currently there are no cancer treatments approved specifically for people with a CDH1 mutation, nor guidelines for treating cancer specifically for people with a CDH1 mutation. To learn more about standard of care treatment options for specific types of cancer, visit our section on Cancer Treatment by Cancer Type.
Surgical decisions for women diagnosed with breast cancer
Because of the risk for a second breast cancer diagnosis, women who are diagnosed with breast cancer who test positive for an inherited mutation in CDH1 may choose bilateral mastectomy rather than lumpectomy and radiation. Mutation carriers who undergo mastectomy are less likely to develop a second breast cancer.
If you have an CDH1 mutation and have been diagnosed with cancer, you can find peer support through the following resources:
- Register for the FORCE Message Boards to connect with others who share your situation. Once you register, you can post on the Share Your Mutation board to connect with other people who carry an CDH1 mutation and the Diagnosed With Cancer board to connect with other people who have been diagnosed.
- FORCE's Peer Navigation Program will match you with a volunteer who shares your mutation and situation and provide you with a free resource guide.
- Contact the FORCE impact leaders in your area to link to local support groups and other resources.
- Attend a virtual support meeting in your area.
- Read the stories from members of our community.
You can also find support through this organization:
- No Stomach for Cancer is a nonprofit with a mission to support research and unite the caring power of people worldwide affected by stomach cancer.