Patient Advocate Leaders (PALs) help drive and support public policy initiatives
Public policies, in the form of state or federal laws and regulations, support access to cancer detection, prevention and treatment options. However, public policies are often designed with the general population—not the hereditary cancer community—in mind. It’s up to us to advocate for policies that address the unique needs of our high-risk, hereditary cancer community.
Share your experiences with the high cost of colonoscopy or difficulty getting affordable insurance coverage for breast screening MRIs. Be a voice for the people who need access to fertility services or have been denied life insurance because of their genetic mutation.
Patient Advocate Leaders are individuals with or at risk of hereditary cancer, as well as their family members, caregivers, healthcare providers and others who are trained to provide the patient perspective and share their real-world experiences to help shape laws and regulations. Most advocates are not public policy experts. FORCE provides training and guidance to help its PALs volunteers gain the skills they need to effectively advocate on behalf of the community.
Participating in advocacy allows people to share their knowledge, experience and enthusiasm. There are many opportunities to affect public policy change including emails, calls or meetings with lawmakers, speaking or submitting comments at a legislative hearing, social media posts and more. Each type of advocacy is an opportunity to raise awareness and improve the landscape for hereditary cancer previvors, survivors and thrivers.
The PALs Program is funded in partnership with: