Exploring How BRCA+ Previvors Experience Joy
Survey and interviews about joy and emotions following genetic results for BRCA+ previvors
Study Contact Information:
Contact Caroline Nelson by phone at 251-654-5286
About the Study
NOTE: This study is no longer recruiting people.
After learning of their BRCA+ status, many individuals experience a range of emotions, including anxiety, grief, and uncertainty. However, joy is an aspect of many people’s stories that is not typically explored in research. The purpose of this study is to characterize the lived experiences of individuals who do not have a history of cancer after learning of their BRCA+ status through interviews.
This Study is Open To:
NOTE: This study is no longer recruiting people.
People who are:
- Age 18 or older
- Located in the United States
- Speak English
- Have a or mutation
- Are a (no personal history of cancer)
This Study is NOT Open To:
NOTE: This study is no longer recruiting people.
People who:
- Are under age 18
- Do not have a or mutation
- Have a diagnosis of cancer
- Discovered their mutation status through Direct-to-Consumer testing
What the Study Involves
This study involves a 5-minute demographic questionnaire and a 1-hour web-based interview.
Lead Researchers/Study PIs and Affiliation:
Study PI: Katie Church, MS, CGC
Study contact and student Researcher: Caroline Nelson
Institution: University of Alabama at Birmingham
Study Contact Information:
Contact Caroline Nelson by phone at 251-654-5286
Survey and interviews about joy and emotions following genetic results for BRCA+ previvors
Study Contact Information:
Contact Caroline Nelson by phone at 251-654-5286