Exploring How BRCA+ Previvors Experience Joy

About the Study

NOTE: This study is no longer recruiting people.

After learning of their BRCA+ status, many individuals experience a range of emotions, including anxiety, grief, and uncertainty. However, joy is an aspect of many people’s stories that is not typically explored in research. The purpose of this study is to characterize the lived experiences of individuals who do not have a history of cancer after learning of their BRCA+ status through interviews.

What the Study Involves

This study involves a 5-minute demographic questionnaire and a 1-hour web-based interview.

Lead Researchers/Study PIs and Affiliation:

Study PI: Katie Church, MS, CGC
Study contact and student Researcher: Caroline Nelson
Institution: University of Alabama at Birmingham

NOTE: This study is no longer recruiting people.

People who are:

• Age 18 or older
• Located in the United States
• Speak English
• Have a BRCA1 or BRCA2 mutation
• Are a previvor (no personal history of cancer)

NOTE: This study is no longer recruiting people.

People who:

• Are under age 18
• Do not have a BRCA1 or BRCA2 mutation
• Have a diagnosis of cancer
• Discovered their BRCA mutation status through Direct-to-Consumer testing