Survey for Individuals With a Hereditary Cancer Genetic Testing Result That was Later Reclassified
Survey for people whose genetic test results were reclassified
Study Contact Information:
Principal investigator: Mitch McElfresh ([email protected])
Faculty advisor: Gwen Reiser ([email protected])
Survey For Individuals With A Hereditary Cancer Genetic Testing Result That Was Later Reclassified
About the Study
This study is no longer recruiting people.
Researchers at the University of Nebraska Medical Center are conducting an online survey to look into the personal experiences of people who have received reclassified genetic testing results concerning hereditary cancer-related genes. Reclassification is the process of reviewing and revising the interpretation of genetic variants, such as changing a positive result to negative. The study aims to investigate patient perspectives on healthcare providers' communication about reclassification, along with preferred methods for providers to reconnect and convey results.
What the Study Entails
An online survey of 30 questions which takes around 20 minutes to complete. Participants will be compensated for their time through a raffle for the opportunity to receive a gift card.
Take the survey at this link or scan the QR code:
Lead Researchers/Study PIs and Affiliation
Institution: University of Nebraska Medical Center
PI: Mitch McElfresh, BS, BA
Chair: Bronson Riley MS, CGC
Faculty advisor: Gwen Reiser, MS, CGC
Co-investigator: Katie Church MS, CGC
Co-investigator: Charlie King MGC, CGC
This study is no longer recruiting people.
This study is no longer recruiting people.