Advocacy

FORCE advocates for families facing hereditary breast and ovarian cancer in areas such as access to care, research funding, insurance, and privacy.

Advocacy > Introduction to Advocacy


Newsflash

9/3/2019
We joined over 50 orgs representing millions of patients, advocates, caregivers, researchers, and physicians to express support for appointment of Norman Sharpless as FDA Commissioner.

7/26/2019
FORCE is supporting legislation (H.R. 4078) to reauthorize and increase funding for the Breast Cancer Education and Awareness Requires Learning Young Act (EARLY) Act.

6/27/2019
We played a lead role in drafting coalition comments on the FDA's proposed mammography guideline updates.

6/21/2019
FORCE recommendations regarding genomics were accepted and will be integrated into the Healthy People 2030 objectives.

6/3/2019
Today, the FDA announced a new pilot program called Project Facilitate to assist oncologists in requesting access to unapproved therapies for cancer patients.

What is Advocacy?

FORCE is a wealth of information and support for families with hereditary cancer. My hereditary cancer journey - and that of my previvor daughter - has been so much easier because of FORCE.

Susan Davis, FORCE Outreach Coordinator and Hereditary Breast Cancer Survivor

Introduction to Advocacy

Advocacy is a top priority for FORCE. The term “advocacy” encompasses a broad range of activities that can improve outcomes for a person or group of people. Health advocacy refers to work done by an organization to improve access to information and care, regulatory oversight, or research for a specific disease or population. FORCE works with a broad range of stakeholders to improve the lives of people affected by hereditary cancer.

Legislative & Regulatory

Federal and state laws, regulations, and guidelines affect the health information and care that people receive, including the types of screening, prevention, and treatment that health insurance plans must cover, which lab tests or medications are available, and what screening services doctors should discuss with patients. FORCE initiates new or revised policies, weighs in as laws and regulations are interpreted, and fights policies that aren’t in the best interest of the hereditary cancer community.

Research

In the past, the only role for patients and non-scientists in the research process was as research study participants. The paradigm is shifting. Increasingly, the value of including input from the patient community is recognized. FORCE plays a part in shaping research and recruiting for studies that are pertinent to the hereditary cancer community. FORCE also trains members of the hereditary cancer community to engage in research advocacy.

Visit Current Issues to learn more about some of our recent advocacy work on behalf of the hereditary cancer community.

 

FORCE:Facing Our Risk of Cancer Empowered