Advocacy

FORCE advocates for families facing hereditary breast and ovarian cancer in areas such as access to care, research funding, insurance, and privacy.

Advocacy > Introduction to Advocacy


Newsflash

5/11/2020
Joined the Partnership to Improve Patient Care in a letter to the new VP for Patient Engagement at the Institute for Clinical and Economic Review (ICER), offering to partner in advancing patient engagement and patient-centeredness at ICER.

4/22/2020
Collaborated in requests for additional funding in the Paycheck Protection Program Health Care Enhancement Act (H.R. 266), a COVID-19 supplemental appropriations bill, to help sustain biomedical research. 

4/15/2020
Teamed up with 50 cancer groups in urging Congress and HHS to take additional steps to make accessing care easier for cancer patients/survivors during the COVID-19 crisis.

4/14/2020
FORCE and 100+ orgs advocated that legislators increase funding for the FY21 Defense Appropriations Act to foster improved research under the DoD CDMRP.

4/13/2020
Participated in the Coalition to Improve Access to Cancer Care (CIACC) letter to U.S. House leadership re: including the Cancer Drug Parity Act (H.R. 1730) in the 4th COVID-19 stimulus bill.

What is Advocacy?

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FORCE is a wealth of information and support for families with hereditary cancer. My hereditary cancer journey - and that of my previvor daughter - has been so much easier because of FORCE.

Susan Davis, FORCE Outreach Coordinator and Hereditary Breast Cancer Survivor

Introduction to Advocacy

Advocacy is a top priority for FORCE. The term “advocacy” encompasses a broad range of activities that can improve outcomes for a person or group of people. Health advocacy refers to work done by an organization to improve access to information and care, regulatory oversight, or research for a specific disease or population. FORCE works with a broad range of stakeholders to improve the lives of people affected by hereditary cancer.

Legislative & Regulatory

Federal and state laws, regulations, and guidelines affect the health information and care that people receive, including the types of screening, prevention, and treatment that health insurance plans must cover, which lab tests or medications are available, and what screening services doctors should discuss with patients. FORCE initiates new or revised policies, weighs in as laws and regulations are interpreted, and fights policies that aren’t in the best interest of the hereditary cancer community.

Research

In the past, the only role for patients and non-scientists in the research process was as research study participants. The paradigm is shifting. Increasingly, the value of including input from the patient community is recognized. FORCE plays a part in shaping research and recruiting for studies that are pertinent to the hereditary cancer community. FORCE also trains members of the hereditary cancer community to engage in research advocacy.

Visit Current Issues to learn more about some of our recent advocacy work on behalf of the hereditary cancer community.

 

FORCE:Facing Our Risk of Cancer Empowered