Advocacy

FORCE advocates for families facing hereditary breast and ovarian cancer in areas such as access to care, research funding, insurance, and privacy.

Advocacy > Introduction to Advocacy


Newsflash

12/17/2019 - A FORCE staff member made comments at the FDA ODAC hearing in favor of olaparib as maintenance therapy for BRCA+ metastatic pancreatic cancer patients.

12/9/2019 - FORCE and 100+ orgs advocated that legislators complete FY20 Defense Appropriations Act negotiations and quickly pass/enact the bill to ensure continued funding of the DoD CDMRP.

12/4/2019 - We wrote South Carolina Senate medical affairs committee members asking that they support genetic counselor licensure in the state.

12/4/2019 - We joined the MedEx Coalition in asking elected officials to co-sponsor the Medical Expense Savings Act, legislation making the 7.5% threshold for medical expense deductions permanent.

11/4/2019 - FORCE, along with hundreds of medical and patient advocacy orgs, expressed support for a long-term reauthorization of PCORI.

What is Advocacy?

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FORCE is a wealth of information and support for families with hereditary cancer. My hereditary cancer journey - and that of my previvor daughter - has been so much easier because of FORCE.

Susan Davis, FORCE Outreach Coordinator and Hereditary Breast Cancer Survivor

Introduction to Advocacy

Advocacy is a top priority for FORCE. The term “advocacy” encompasses a broad range of activities that can improve outcomes for a person or group of people. Health advocacy refers to work done by an organization to improve access to information and care, regulatory oversight, or research for a specific disease or population. FORCE works with a broad range of stakeholders to improve the lives of people affected by hereditary cancer.

Legislative & Regulatory

Federal and state laws, regulations, and guidelines affect the health information and care that people receive, including the types of screening, prevention, and treatment that health insurance plans must cover, which lab tests or medications are available, and what screening services doctors should discuss with patients. FORCE initiates new or revised policies, weighs in as laws and regulations are interpreted, and fights policies that aren’t in the best interest of the hereditary cancer community.

Research

In the past, the only role for patients and non-scientists in the research process was as research study participants. The paradigm is shifting. Increasingly, the value of including input from the patient community is recognized. FORCE plays a part in shaping research and recruiting for studies that are pertinent to the hereditary cancer community. FORCE also trains members of the hereditary cancer community to engage in research advocacy.

Visit Current Issues to learn more about some of our recent advocacy work on behalf of the hereditary cancer community.

 

FORCE:Facing Our Risk of Cancer Empowered