What Happens After the Letter? Exploring the Comprehension and Impact of 'Dear Family Letters'
Surveys, Registries, Interviews
This study explores how “dear family letters” affect understanding of inherited cancer risk
Study Contact Information:
For additional information, please contact: Lucy Richards, BS, Email: [email protected] or
Laiken Kentnich, MS, CGC (PI), Email: [email protected]
About the Study
This study will explore how “dear family letters” influence understanding of genetic risk and cascade testing among individuals and families affected by . A “dear family letter” is a letter written by a healthcare provider or genetic counselor that explains a family member’s genetic test result and encourages relatives to consider genetic counseling or testing. These letters are often shared within families to help communicate information about risk and next steps.
This Study is Open To:
Individuals aged 18 years or older who meet the following criteria:
- Able to read and speak English
- Received a “dear family letter” about a or tumor predisposition syndrome in 2025
This Study is NOT Open To:
- Individuals under the age of 18
- Individuals who are not able to read and speak English
- Individuals who have not received a "dear family letter" or have not received a letter prior to 2025
What the Study Involves
Participation involves a one-time virtual interview lasting approximately 45–60 minutes. During the interview, participants will be asked about their experience receiving the letter, how it shaped their understanding of genetic risk and cascade testing, how it affected communication with family members, and what could be improved to better support families in the future. Eligible participants who complete the interview will be compensated with a $50 gift card. If you are interested in participating, please complete the following questionnaire to confirm eligibility and contact information: https://northwestern.az1.qualtrics.com/jfe/form/SV_aWgaHNXlJklV4bA
Study Contact Information:
For additional information, please contact: Lucy Richards, BS, Email: [email protected] or
Laiken Kentnich, MS, CGC (PI), Email: [email protected]
Surveys, Registries, Interviews
This study explores how “dear family letters” affect understanding of inherited cancer risk
Study Contact Information:
For additional information, please contact: Lucy Richards, BS, Email: [email protected] or
Laiken Kentnich, MS, CGC (PI), Email: [email protected]