What Happens After the Letter? Exploring the Comprehension and Impact of 'Dear Family Letters'

About the Study

This study will explore how “dear family letters” influence understanding of genetic risk and cascade testing among individuals and families affected by hereditary cancer. A “dear family letter” is a letter written by a healthcare provider or genetic counselor that explains a family member’s genetic test result and encourages relatives to consider genetic counseling or testing. These letters are often shared within families to help communicate information about inherited cancer risk and next steps.

What the Study Involves

Participation involves a one-time virtual interview lasting approximately 45–60 minutes. During the interview, participants will be asked about their experience receiving the letter, how it shaped their understanding of genetic risk and cascade testing, how it affected communication with family members, and what could be improved to better support families in the future. Eligible participants who complete the interview will be compensated with a $50 gift card. If you are interested in participating, please complete the following questionnaire to confirm eligibility and contact information: https://northwestern.az1.qualtrics.com/jfe/form/SV_aWgaHNXlJklV4bA

Individuals aged 18 years or older who meet the following criteria:

• Able to read and speak English
• Received a “dear family letter” about a hereditary cancer or tumor predisposition syndrome in 2025

• Individuals under the age of 18
• Individuals who are not able to read and speak English
• Individuals who have not received a "dear family letter" or have not received a letter prior to 2025