A Registry of People with Triple Negative Breast Cancer and/or an ATM, BARD1, BRCA1, BRCA2, BRIP1, CDH1, CHEK2, EPCAM, MLH1, MSH2, MSH6, NF1, PALB2, PTEN, RAD51C, RAD51D, STK11, TP53 Genetic Mutation
Surveys, Registries, Interviews
Registry study for TNBC and hereditary breast and ovarian cancer mutations
Clinicaltrials.gov identifier:NCT02302742
Study Contact Information:
For additional information, please contact:
Name: Joshua Staley
Phone Number: 913-588-8548
Email: [email protected]
Or the contact listed for the study location closest to you.
About the Study
This registry is collecting cancer-related information from people with and from people with inherited mutations linked to breast and ovarian cancer, such as an , , , , , , , , , , , , , , , , , genetic mutation. The goal is to better understand how these genetic changes may be related to cancer outcomes in .
This Study is Open To:
People of any age, who meet one of the following criteria:
- (ER-negative, PR-negative, )
- Diagnosed within the past 5 years
- Any (I-IV)
- Any age at diagnosis
- Genetic testing status does not affect eligibility
- People with an inherited genetic mutation in a gene related to breast and ovarian cancer
- Pathogenic or Uncertain () changes in genes such as: , , , , , , , , , , , , , , , , ,
- People can join regardless of their personal cancer history – both previvors and those who have been diagnosed with cancer are welcome
This Study is NOT Open To:
- People diagnosed with more than five years ago
- People who do not carry an inherited genetic mutation in a gene related to breast and ovarian cancer, such as , , , , , , , , , , , , , , , , ,
What the Study Involves
There are 2 groups in this study:
- People with
- People with an in a gene related to breast and ovarian cancer
Participants will be asked to provide a blood sample as part of this study and will be followed for 10 years.
Study Contact Information:
For additional information, please contact:
Name: Joshua Staley
Phone Number: 913-588-8548
Email: [email protected]
Or the contact listed for the study location closest to you.
Locations:
Kansas
City: Hays RECRUITING
Facility: Hays Medical Center Dreiling-Schmidt Cancer Institute
Contact Info:
785-623-5761
City: Kansas City RECRUITING
Facility: KCCC West
Contact Info:
913-328-3206
City: Overland Park RECRUITING
Facility: KCCC Overland Park
Contact Info:
9132340459
City: Overland Park RECRUITING
Facility: Overland Park Regional Medical Center
Contact Info:
913-498-7892
City: Salina RECRUITING
Facility: Salina Regional Health Center - Tammy Walker Cancer Center
Contact Info:
785-452-7038
City: Westwood RECRUITING
Facility: The University of Kansas Cancer Center
Contact Info:
[email protected]
(913) 588-8548
Missouri
City: Kansas City RECRUITING
Facility: Universtiy Health
Contact Info:
8164044093
City: Kansas City RECRUITING
Facility: KCCC South
Contact Info:
816-823-6640
City: Kansas City RECRUITING
Facility: Research Medical Center
Contact Info:
8162764000
City: Kansas City RECRUITING
Facility: KCCC - North
Contact Info:
816-584-4879
City: Lee's Summit RECRUITING
Facility: KCCC Lee's Summit
Contact Info:
816-350-5825
Surveys, Registries, Interviews
Registry study for TNBC and hereditary breast and ovarian cancer mutations
Clinicaltrials.gov identifier:NCT02302742
Study Contact Information:
For additional information, please contact:
Name: Joshua Staley
Phone Number: 913-588-8548
Email: [email protected]
Or the contact listed for the study location closest to you.