Breastfeeding and Breast Cancer Screening in People at High Risk: Knowledge and Perspectives

About the Study

NOTE: This survey is closed.

Childbearing and nursing may impact approaches to breast cancer screening and prevention; however, little is known about whether women at increased risk of breast cancer receive information about this topic. 

Researchers at the Mayo Clinic and McGill University are partnering with FORCE on a survey of women who have inherited mutations in BRCA1, BRCA2 or other genes (including PALB2, ATM, CHEK2, and others) related to increased breast cancer risk.  Although we invite all eligible women to participate in this study, we are particularly  interested in understanding the needs of women who tested positive for an inherited mutation prior to becoming pregnant and how they made decisions about the timing of pregnancy, breastfeeding, breast cancer screening and risk-reducing surgery.  Decisions related to these issues are complex, and for some topics, there has not been enough research for experts to make recommendations or provide evidence-based guidelines for women. For this reason, we want to learn about women's needs for information about how breastfeeding affects cancer risk and options related to breast cancer screening at reproductive ages.