Breastfeeding and Breast Cancer Screening in People at High Risk: Knowledge and Perspectives
https://www.facingourrisk.org/research-clinical-trials/study/238/survey-for-women-at-high-risk-for-breast-cancer-on-knowledge-and-perspectives-about-breast-cancer-risk-factors-and-screening
Online survey for women with an ATM, BARD1, BRCA1, BRCA2, CDH1, CHEK2, PALB2, PTEN, RAD51C, RAD51D, STK11 or TP53 inherited mutation.
About the Study
NOTE: This survey is closed.
Childbearing and nursing may impact approaches to breast cancer screening and prevention; however, little is known about whether women at increased risk of breast cancer receive information about this topic.
Researchers at the Mayo Clinic and McGill University are partnering with FORCE on a survey of women who have inherited mutations in BRCA1, BRCA2 or other genes (including PALB2, ATM, CHEK2, and others) related to increased breast cancer risk. Although we invite all eligible women to participate in this study, we are particularly interested in understanding the needs of women who tested positive for an inherited mutation prior to becoming pregnant and how they made decisions about the timing of pregnancy, breastfeeding, breast cancer screening and risk-reducing surgery. Decisions related to these issues are complex, and for some topics, there has not been enough research for experts to make recommendations or provide evidence-based guidelines for women. For this reason, we want to learn about women's needs for information about how breastfeeding affects cancer risk and options related to breast cancer screening at reproductive ages.
This Study is Open To:
NOTE: This survey is closed.
This Study is Not Open To:
NOTE: This survey is closed.
About FORCE
FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.