Get notified of page updates
Enroll in Research > Research Search & Enroll Tool > Assessing Decisions about Uterine and Ovarian Cancer Prevention by People with Lynch Syndrome
Printer Friendly Page Assessing Decisions about Uterine and Ovarian Cancer Prevention by People with Lynch Syndrome

Assessing Decisions about Uterine and Ovarian Cancer Prevention by People with Lynch Syndrome

Surveys, Registries, Interviews
Online survey for people with Lynch syndrome

Study Contact Information:

If you have any questions about the study, please reach out to lead researcher Ryan Mahoney’s email ([email protected]) or office phone number (714) 456-5837 at any time and he will happily answer them to the best of his abilities.


Assessing Decisions about Uterine and Ovarian Cancer Prevention by People with Lynch Syndrome

About the Study

This study is seeking information about the personal experiences of uterine and ovarian cancer prevention and screening for people with . An online survey will allow participants to share their experiences which will ultimately help medical practitioners be more aware about the wants, needs, and decision-making strategies used by people with to preserve their gynecological health. If you are interested in participating, please complete this short survey

What the Study Involves

This study will collect online survey results anonymously from eligible participants about general demographic information, personal and family medical history related to , current gynecological decision-making strategies, and current knowledge about .

If you choose to participate in the study, you will only need to complete the survey once and there will be no additional follow up surveys to complete. The survey will take approximately 20 to 30 minutes to complete and, once completed, you will be given the option to enter your email address to be entered into a raffle to receive one of ten $20 Amazon electronic gift cards. If chosen, gift cards will be distributed to the email address provided no later than June 2023.

Click the following link to participate: https://redcap.link/lynchgynecologicalhealthsurvey

Lead Researcher

Ryan Mahoney
Genetic Counseling Student
Department of Pediatrics
Division of Genetic and Genomic Medicine
University of California, Irvine School of Medicine
(714) 456-5837 [email protected]

This Study is Open To:

Anyone 18 years old and above residing in the United States who has been diagnosed with through genetic testing and who is currently or has in the past been at risk of developing cancer of the uterus or ovaries is eligible to take this survey.

This Study is Not Open To:

Individuals are not eligible to participate in this survey if they do not live in the United States, if they had not had genetic testing to identify the genetic cause of their , and if they have had their uterus and ovaries removed before they underwent genetic testing.