Assessing Decisions about Uterine and Ovarian Cancer Prevention by People with Lynch Syndrome

Online survey for people with Lynch syndrome

Study Contact Information:

If you have any questions about the study, please reach out to lead researcher Ryan Mahoney’s email ([email protected]) or office phone number (714) 456-5837 at any time and he will happily answer them to the best of his abilities.

About the Study

This study is seeking information about the personal experiences of uterine and ovarian cancer prevention and screening for people with Lynch syndrome. An online survey will allow participants to share their experiences which will ultimately help medical practitioners be more aware about the wants, needs, and decision-making strategies used by people with Lynch syndrome to preserve their gynecological health. 

NOTE: This study is closed.

What the Study Involves

This study will collect online survey results anonymously from eligible participants about general demographic information, personal and family medical history related to Lynch syndrome, current gynecological decision-making strategies, and current knowledge about Lynch syndrome.

If you choose to participate in the study, you will only need to complete the survey once and there will be no additional follow up surveys to complete. The survey will take approximately 20 to 30 minutes to complete and, once completed, you will be given the option to enter your email address to be entered into a raffle to receive one of ten $20 Amazon electronic gift cards. If chosen, gift cards will be distributed to the email address provided no later than June 2023.

Lead Researcher

Ryan Mahoney
Genetic Counseling Student
Department of Pediatrics
Division of Genetic and Genomic Medicine
University of California, Irvine School of Medicine
(714) 456-5837 [email protected]

This Study is Open To:

NOTE: This study is closed.

This Study is Not Open To:

NOTE: This study is closed.


FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.