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Interview Study about Barriers to Genetic Testing of Family Members in Latin America

Surveys, Registries, Interviews
People with a hereditary cancer gene mutation and relatives living in Latin America

Study Contact Information:

If you have any questions about the study, please email Erin Atkinson at [email protected]
or call or text (347) 709-2389.


Interview Study about Barriers to Genetic Testing of Family Members in Latin America

About the Study

We are interviewing people who identify as Hispanic/Latinx/e with a genetic mutation associated with and close family members who live in Latin America. This research study will describe genetic testing barriers and the communication of genetic risk to family members living in a Latin American country. The goal of this study is to improve the support that cancer genetic counselors can offer to individuals and their international family members.


What the Study Involves

Participants will fill out a short online survey and have a 60 minute interview via telephone or video conference, in either English or Spanish, to discuss their experiences with genetic testing and their international family members. Surveys and interviews will be kept confidential. Participants can share their contact information in order to be entered into a drawing to win one of five $20 Amazon gift cards. At the conclusion of the study, the results will be shared with interested participants in the form of a written summary and an invitation to a presentation.

Please click this link https://bit.ly/LatinAmerSurv to fill out the survey and schedule an interview.

 

Lead Researchers

Erin Atkinson, PhD, Genetic Counseling Program, UTHealth Science Center at Houston
Amanda De Leon, MS, CGC, St. Joseph Health
Aranza Gonzalez Cendejas, MS, CGC, UTHealth Science Center at Houston

This Study is Open To:

People can participate if they:

  • Are 18 years of age or older
  • Identify as Hispanic or Latine
  • Speak English or Spanish
  • Have a known pathogenic (disease-causing) or likely pathogenic variant in a gene associated with a risk.
  • Have close family members who live in a country in Latin America
    • For example: children, brothers and sisters, parents, aunts and uncles, grandparents, or grandchildren
This Study is Not Open To:

People can not join the study if they:

  • Have not undergone genetic testing or genetic testing found a
  • Are under the age of 18
  • Do not have close family members in Latin America