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Understanding the Experiences of Black Women after Cancer Genetic Testing

Understanding the Experiences of Black Women after Cancer Genetic Testing

Surveys, Registries, Interviews
Black women who have tested positive for an inherited mutation

Study Contact Information:

For more information or to participate, contact Malika Sud, msud@bu.edu


Interview: Understanding the Experiences of Black Women after Cancer Genetic Testing

About the Study

We are looking to interview Black women who have received a positive result in a cancer-associated genetic test. We want to hear your story. This research will look at Black women's experiences with cancer genetic testing. 
 

What the Study Entails

If you decide to take part in the study, you would participate in an approximately hour-long interview over Zoom. You would answer some questions about your experiences during and after genetic testing. You would be asked to provide some demographic information. To compensate you for your time, you would receive a $20 gift card. 

 

Lead Researchers and Affiliations

PI: Malika Sud, MS Candidate, Boston University School of Medicine

Affiliated researchers/advisors: Dr. Catharine Wang, PhD, Boston University School of Public Health

Lillian Sosa, MS, CGC, Boston University School of Medicine

Erika Stallings, attorney, health advocate, and writer 

This Study is Open To:

The study is open to people who:

  • are between the ages of 18 – 45 years old, 
  • identify as Black, 
  • identify as female, 
  • have previously had genetic testing, and
  • have received a positive or result in a gene associated with a higher risk for hereditary breast and ovarian cancer.
This Study is Not Open To:

People are not able to participate if they:

  • are younger than age 18,
  • have not had genetic testing for genes associated with an increased cancer risk