Breast and Ovarian Cancer Education Research for African American/Black and Latina Women
Enhancing Genetic Risk Assessment in Underserved Blacks and Latinas at Risk of Hereditary Breast Cancer
About the Study
Researchers are conducting a study to test how well education materials increase use knowledge about hereditary cancer risk. Participants will watch 90 minutes of educational videos and complete 2 short surveys. In all, this will take approximately 3 hours to complete over a two-week period. Everything will be completed over the phone or online. Compensation will be provided for participation.
For more information or to participate contact:
Sara Gómez Trillos by email or by phone: office: 202-687-0806 or cellphone: (434) 374-1816
You may also view the study flier here.
What the Study Entails
- Interested individuals can contact the study team at the phone number or email provided. A study team member (Research assistant) will contact interested people by phone to tell them briefly about the study, assess their interest, and ask a few questions to determine eligibility.
- This study does not test any experimental drug or device.
- Individuals who are eligible and interested in participating, will be shared a copy of the informed consent form, detailing all information about the study and will discuss the procedures with a trained research assistant. Participation is completely voluntary. Anyone who gives their informed consent to participate, will be randomized into an immediate BRCA-Gist tutorial arm or a delayed BRCA-Gist Tutorial arm. All participants will be asked to watch the BRCA-Gist Tutorial, which consists of several short educational videos (~90 minutes) and answer to two short online surveys in the spam of two weeks.
- Participants will receive a $25 compensation for completion of the first survey and a $35 compensation for completion of the second survey. We anticipate no costs to the participants related to participating in the study.
- All study procedures will be conducted by phone and online.
- A follow-up survey two weeks after the first survey is the only follow up we will conduct for this study.
Alejandra Hurtado de Mendoza, Ph.D.
Lombardi Comprehensive Cancer Center, Georgetown University
Contact information: by email or phone: office: 202-687-8916 (Working remotey)
Vanessa Sheppard, Ph.D
Department Chair, Professor
Massey Cancer Center, Virginia Commonwealth University
Contact information: by email
The following people are eligible for the study:
- Self-identify as women
- Self-identify as Black, African American, Hispanic, or Latinx
- Meet the NCCN 2020 guidelines to consider GCRA
- 18 years-old or older
- Be fluent in spoken and written English.
- Participants who are not able to access the internet or do not have an email address will be excluded from the study.
- Participants who cannot read or write will be excluded from the study.
- Participants who have already received genetic counseling and/or genetic testing for hereditary breast cancer risk will be excluded from this study.
- Participants who were part of Phase 1 of this study may not participate.