Breast and Ovarian Cancer Education Research for African American/Black and Latina Women
Prevention:
Breast
Study Contact Information:
Study coordinator:
Sara Gómez Trillos by email or by phone: (434) 374-1816
Enhancing Genetic Risk Assessment in Underserved Blacks and Latinas at Risk of Hereditary Breast Cancer
About the Study
Researchers are conducting a study to test how well education materials increase use knowledge about hereditary cancer risk. Participants will watch 90 minutes of educational videos and complete 2 short surveys. In all, this will take approximately 3 hours to complete over a two-week period. Everything will be completed over the phone or online. Compensation will be provided for participation.
For more information or to participate contact:
Sara Gómez Trillos by email or by phone: (434) 374-1816
You may also view the study flier here.
What the Study Entails
- Interested individuals can contact the study team at the phone number or email provided. A study team member (Research assistant) will contact interested people by phone to tell them briefly about the study, assess their interest, and ask a few questions to determine eligibility.
- This study does not test any experimental drug or device.
- Individuals who are eligible and interested in participating, will be shared a copy of the informed consent form, detailing all information about the study and will discuss the procedures with a trained research assistant. Participation is completely voluntary. Anyone who gives their informed consent to participate, will be randomized into an immediate BRCA-Gist tutorial arm or a delayed BRCA-Gist Tutorial arm. All participants will be asked to watch the BRCA-Gist Tutorial, which consists of several short educational videos (~90 minutes) and answer to two short online surveys in the spam of two weeks.
- Participants will receive a $25 compensation for completion of the first survey and a $35 compensation for completion of the second survey. We anticipate no costs to the participants related to participating in the study.
- All study procedures will be conducted by phone and online.
- A follow-up survey two weeks after the first survey is the only follow up we will conduct for this study.
Principal Investigators:
Alejandra Hurtado de Mendoza, Ph.D.
Assistant Professor
Lombardi Comprehensive Cancer Center, Georgetown University
Contact information: by email or phone: office: 202-687-8916 (Working remotely)
Vanessa Sheppard, Ph.D
Department Chair, Professor
Massey Cancer Center, Virginia Commonwealth University
Contact information: by email
The following people are eligible for the study:
- Self-identify as women
- Self-identify as Black, African American, Hispanic, or Latinx
- Meet the NCCN 2020 guidelines to consider GCRA
- 18 years-old or older
- Be fluent in spoken and written English.
- Participants who are not able to access the internet or do not have an email address will be excluded from the study.
- Participants who cannot read or write will be excluded from the study.
- Participants who have already received genetic counseling and/or genetic testing for hereditary breast cancer risk will be excluded from this study.
- Participants who were part of Phase 1 of this study may not participate.