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Breast and Ovarian Cancer Education Research for African American/Black and Latina Women

Breast and Ovarian Cancer Education Research for African American/Black and Latina Women

Prevention:
Breast

Study Contact Information:

Study coordinator:
Sara Gómez Trillos by email or by phone: office: 202-687-0806 or cellphone: (434) 374-1816
Alejandra Hurtado de Mendoza, PhD by email or phone: office: 202-687-8916 (Working remotey)
Vanessa Sheppard, PhD by email

Enhancing Genetic Risk Assessment in Underserved Blacks and Latinas at Risk of Hereditary Breast Cancer

About the Study

Researchers are conducting a study to test how well education materials increase use knowledge about hereditary cancer risk. Participants will watch 90 minutes of educational videos and complete 2 short surveys. In all, this will take approximately 3 hours to complete over a two-week period. Everything will be completed over the phone or online. Compensation will be provided for participation.

For more information or to participate contact: 

Sara Gómez Trillos by email or by phone: office: 202-687-0806 or cellphone: (434) 374-1816

You may also view the study flier here.

What the Study Entails

  • Interested individuals can contact the study team at the phone number or email provided. A study team member (Research assistant) will contact interested people by phone to tell them briefly about the study, assess their interest, and ask a few questions to determine eligibility.  
  • This study does not test any experimental drug or device.
  • Individuals who are eligible and interested in participating, will be shared a copy of the informed consent form, detailing all information about the study and will discuss the procedures with a trained research assistant. Participation is completely voluntary. Anyone who gives their informed consent to participate, will be randomized into an immediate BRCA-Gist tutorial arm or a delayed BRCA-Gist Tutorial arm. All participants will be asked to watch the BRCA-Gist Tutorial, which consists of several short educational videos (~90 minutes) and answer to two short online surveys in the spam of two weeks.
  • Participants will receive a $25 compensation for completion of the first survey and a $35 compensation for completion of the second survey. We anticipate no costs to the participants related to participating in the study.
  • All study procedures will be conducted by phone and online.
  • A follow-up survey two weeks after the first survey is the only follow up we will conduct for this study.

Principal Investigators:

Alejandra Hurtado de Mendoza, Ph.D.
Assistant Professor
Lombardi Comprehensive Cancer Center, Georgetown University
Contact information: by email or phone: office: 202-687-8916 (Working remotey)

Vanessa Sheppard, Ph.D
Department Chair, Professor
Massey Cancer Center, Virginia Commonwealth University
Contact information: by email

This Study is Open To:

The following people are eligible for the study:

  • Self-identify as women
  • Self-identify as Black, African American, Hispanic, or Latinx
  • Meet the NCCN 2020 guidelines to consider GCRA
  • 18 years-old or older
  • Be fluent in spoken and written English.
This Study is Not Open To:
  • Participants who are not able to access the internet or do not have an email address will be excluded from the study.
  • Participants who cannot read or write will be excluded from the study.
  • Participants who have already received genetic counseling and/or genetic testing for hereditary breast cancer risk will be excluded from this study.
  • Participants who were part of Phase 1 of this study may not participate.