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Surveys, Registries, Interviews
Registry for people with an inherited mutation or variant of uncertain significance
Identification and Analysis of Families With Genetic Susceptibility To Cancer Registry
The research laboratory at the Abramson Cancer Center is studying genetic sources of cancer risk and currently has one of the largest collections (also called a registry) of families with known or suspected risk in the world. A number of research projects are performed in collaboration with this registry. Research participants receive a numerical identification number that protects their privacy. Collaborating centers do not have access to personal identifiers such as names and dates of birth because only the numerical identifiers are shared.