Hereditary Cancer Advocacy Coalition

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FORCE established the Hereditary Cancer Advocacy Coalition (HCAC) to advance federal and state public policies that expand access to health services needed by the hereditary cancer community.

The coalition brings together a diverse group of stakeholders interested in healthcare policy and practice reform that leads to improved outcomes for individuals with or at risk of hereditary cancers. There is no cost associated with membership in the HCAC. Participation is open to FORCE partners and other patient advocacy organizations and health professional societies with a vested interest in the hereditary cancer community.

Coalition Goals

  • Build awareness about hereditary cancer and the barriers that hinder access to guideline-recommended care.
  • Identify opportunities to increase access to healthcare needed by individuals in the hereditary cancer community, i.e., genetic counseling and testing, biomarker testing, high-risk (“supplemental”) cancer screenings, fertility services, targeted therapies, risk-reducing interventions and other issues as determined by the coalition.
  • Engage patient and provider groups in advocacy, addressing obstacles to appropriate care via public policy solutions, with an emphasis on health equity.

The coalition meets monthly to discuss current policy developments. Members include prominent national organizations and smaller nonprofits, ensuring that everyone has the chance to remain updated and actively participate in advocacy efforts supporting individuals affected by hereditary cancer.

Current Members

  • Academy of Oncology Nurse & Patient
  • Navigators (AONN)
  • After Breast Cancer Diagnosis
  • AliveAndKickn’
  • Alliance for Patient Access
  • American Association of Clinical Urologists
  • American Cancer Society Cancer
  • Action Network
  • American College of Gastroenterology
  • American College of Medical Genetics
  • American College of Obstetricians and Gynecologists (ACOG)
  • American Society of Breast Surgeons
  • American Society of Clinical Oncology
  • American Urological Association
  • Association of American Cancer Institutes
  • BRCA Exchange
  • Brem Foundation to Defeat Breast Cancer
  • Cancer Support Community
  • CancerCare
  • Cancer Nation
  • Colon Cancer Coalition
  • Colorectal Cancer Alliance
  • CureBRCA
  • Debbie's Dream Foundation
  • Families Fighting Hereditary Cancer
  • Fight Colorectal Cancer
  • GI Cancers Alliance
  • Healthy Women
  • Hope for Stomach Cancer
  • I Will Survive, Inc.
  • JScreen
  • Let’s Win Pancreatic Cancer
  • Living Beyond Breast Cancer
  • The Male Breast Cancer Global Alliance
  • Mayberry Memorial
  • National Alliance for Hispanic Health
  • National Association of Nurse Practitioners in Women’s Health
  • National Comprehensive Cancer Network
  • National Consortium of Breast Centers
  • National Ovarian Cancer Coalition
  • National Pancreas Foundation
  • National Patient Advocate Foundation
  • National Society of Genetic Counselors
  • No Stomach for Cancer
  • Nothing Pink
  • Oncology Nursing Society
  • Ovarian Cancer Research Alliance
  • Pancreatic Cancer Action Network
  • Patient Empowerment Network
  • Prevent Cancer Foundation
  • PTEN World
  • Sharsheret
  • Society of Gynecologic Oncology
  • Susan G. Komen
  • Tigerlily Foundation
  • Triage Cancer
  • ZERO Prostate Cancer

Interested in joining the HCAC? Contact Lisa Schlager for more information.

FORCE