Who are patient stakeholders?
Patient and community stakeholders include:
- advocacy groups
- community-based organizations
These stakeholders have a vested interest in getting funding for, supporting and participating in research that improves overall health and wellbeing, medical care and outcomes for the patient community now and in the future.
They can share their individual and collective experiences, connect researchers with additional members of the patient community and provide researchers with invaluable understanding of the burden of disease, the burden of treatment and social determinants of health.
As active participants on a study team, their contributions may improve the speed, efficiency, representativeness and effectiveness of your research as well as the dissemination of successful results and uptake in improvements in care.