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Hereditary Cancer & Genetic Testing

Risk Management & Treatment

Research

Support & Public Policy

Resources

Hereditary Cancer & Genetic Testing Go back to previous menu.

Hereditary Cancer Basics

Learn how gene mutations can lead to cancer, what types of cancer may be hereditary and how parents can pass inherited mutations to their children.

Cancer Risks by Gene

Read about different genes that are linked to hereditary cancer and the risks associated with inherited mutations in these genes.

How Do I Get Genetic Testing?

Learn more about genetic testing and how to take the next steps to get tested.

After Testing Now What

Learn how to make medical decisions and assemble your health care team once you receive your genetic test results.

Sharing Results with Family

Explore tips to help you communicate your family medical history or genetic test results with relatives.

Risk Management & Treatment Go back to previous menu.

Fertility & Family Planning

Risk Management & Treatment by Mutation

Review updated information on cancer risks and national guidelines on screening, prevention and treatment options listed by gene.

Risk Management & Treatment by Cancer

Review updated information on screening, prevention and treatment options listed by cancer site.

Risk Management & Treatment by Treatment Type

Review information on prevention and treatment options listed by treatment type

Risk Management for Transgender People

Review guidelines on prevention and screening options for transgender people with inherited mutations.

Types of Reconstruction

Understand the types of breast reconstruction.

Going Flat

Learn more about the option of going flat.

Preparation and Recovery

Prepare for surgery and recovery.

Photo and Video Gallery

See images & videos of individuals after mastectomy and reconstruction.

Menopause

Learn about ways to manage the effects of menopause with and without hormones.

Well-Being & Survivorship

Learn how to manage the short- and long-term effects of cancer risk, diagnosis, prevention and treatment.

Research Go back to previous menu.

Search and Enroll

Ready to enroll? Our tools will help match you to hereditary cancer detection, prevention and treatment studies.

How to Find Studies

These tips and resources will help you locate clinical trials and studies enrolling people like you.

Why Enroll in Research?

Learn why you should consider enrolling in a research study and your rights and protections as a research participant.

Help Shape Research

FORCE trains patients with no science background to use their personal experiences to help guide hereditary cancer research.

Resources for Researchers

These tips and resources were developed by research advocates to help investigators work with patient stakeholders to strengthen and accelerate their research.

Support & Public Policy Go back to previous menu.

Peer Navigation Matching Program

Match with a Peer Navigator volunteer with similar experience as you for confidential 1:1 phone/email support and a free resource guide.

Support Meetings & Partner Events

Review our calendar to connect with others and obtain support and vital resources.

Private Facebook Group

Connect with others over social media who are affected by hereditary cancer.

Message Boards

Register for our forum where you can discuss topics online 24/7 with other people who face similar hereditary cancer concerns.

Helpline

Ask questions and receive nonjudgmental support and resources in English and Spanish. A Genetic Counselor helpline is also available.

Decision Checklists and Tip Sheets

Use our interactive tool to create personalized lists of questions to ask your doctors and tips to prepare for surgeries and procedures.

Find Healthcare Providers

Locate services or medical experts knowledgeable in cancer genetics, including genetic counselors, oncologists, surgeons, fertility experts and more.

Volunteer

Get involved by supporting others, advocating for laws and research that benefit our community and raising awareness of hereditary cancer on social media.

Insurance & Reimbursement

Learn about health insurance coverage and reimbursement for healthcare services. Get tips on insurance appeals and customizable sample appeal letters.

Financial Assistance

Find national resources and grant programs to help offset costs for genetic services, cancer screenings, surgeries, treatments and more.

Federal Laws

Learn about laws and legal protections affecting the hereditary cancer community—ACA, GINA, WHCRA—and how to file a grievance or complaint.

Federal Policy Efforts

Read about federal laws and legal protections affecting the hereditary cancer community and how to file a grievance or complaint.

Advocacy Day

Learn about Advocacy Day and how you can help educate Congress about important issues faced by people in the hereditary cancer community.

State Laws

Get information on state laws that guide coverage and costs of cancer screenings and diagnostic imaging needed by those at risk of hereditary cancers.

State Policy Efforts

Read about our engagement in key state legislative efforts, ensuring that the voice of the high-risk, hereditary cancer community is represented.

Volunteer

You can make a difference! Learn how you can help FORCE advocate for the hereditary cancer community at the state and federal levels.

Resources Go back to previous menu.

Behind the Headlines (XRAY)

Our XRAY program takes you behind the headlines to bring you reliable information about cancer research-related news and information.

Blog

Education and personal perspectives on topics of interest to our community.

Glossary

Find definitions for commonly used terms.

Brochures

Order or download our educational materials.

Webinars

Our live and on demand webinars feature presentations by experts on topics of interest and importance to our community.

Previvors

Information and resources that address the unique needs of the previvor community.

LGBTQIA+

Information and resources for people who identify with the LGBTQIA+ community and who have an inherited mutation linked to cancer.

Lynch Syndrome

Learn about Lynch syndrome and find information, resources and research specifically for the Lynch syndrome community.

En Español

¿El cáncer en su familia es hereditario? Aprenda sobre la prueba genética para identificar el riego de cáncer hereditario y los pasos a seguir para proteger su salud y la de su familia

FORCE Partners

Learn about organizations we work with to advocate for greater awareness, broader access to care, and better treatment and prevention options for all those who are impacted by hereditary cancer.

For Healthcare Providers

Information and resources for members of the healthcare or research community who focus on hereditary cancers.

For Researchers

Tips and tools to help investigators work with patient stakeholders to strengthen and accelerate their research.

Donate

About Us

Español

Close menu

Hereditary Cancer Basics

Learn how gene mutations can lead to cancer, what types of cancer may be hereditary and how parents can pass inherited mutations to their children.

Cancer Risks by Gene

Read about different genes that are linked to hereditary cancer and the risks associated with inherited mutations in these genes.

How Do I Get Genetic Testing?

Learn more about genetic testing and how to take the next steps to get tested.

After Testing Now What

Learn how to make medical decisions and assemble your health care team once you receive your genetic test results.

Sharing Results with Family

Explore tips to help you communicate your family medical history or genetic test results with relatives.

Close menu

Fertility & Family Planning

Risk Management & Treatment by Mutation

Review updated information on cancer risks and national guidelines on screening, prevention and treatment options listed by gene.

Risk Management & Treatment by Cancer

Review updated information on screening, prevention and treatment options listed by cancer site.

Risk Management & Treatment by Treatment Type

Review information on prevention and treatment options listed by treatment type

Risk Management for Transgender People

Review guidelines on prevention and screening options for transgender people with inherited mutations.

Types of Reconstruction

Understand the types of breast reconstruction.

Going Flat

Learn more about the option of going flat.

Preparation and Recovery

Prepare for surgery and recovery.

Photo and Video Gallery

See images & videos of individuals after mastectomy and reconstruction.

Menopause

Learn about ways to manage the effects of menopause with and without hormones.

Well-Being & Survivorship

Learn how to manage the short- and long-term effects of cancer risk, diagnosis, prevention and treatment.

Fertility and Family Planning

Learn about the effects of cancer treatment and prevention on fertility and family planning and options for assisted reproduction.

Close menu

Search and Enroll

Ready to enroll? Our tools will help match you to hereditary cancer detection, prevention and treatment studies.

How to Find Studies

These tips and resources will help you locate clinical trials and studies enrolling people like you.

Why Enroll in Research?

Learn why you should consider enrolling in a research study and your rights and protections as a research participant.

Help Shape Research

FORCE trains patients with no science background to use their personal experiences to help guide hereditary cancer research.

Resources for Researchers

These tips and resources were developed by research advocates to help investigators work with patient stakeholders to strengthen and accelerate their research.

Close menu

Peer Navigation Matching Program

Match with a Peer Navigator volunteer with similar experience as you for confidential 1:1 phone/email support and a free resource guide.

Support Meetings & Partner Events

Review our calendar to connect with others and obtain support and vital resources.

Private Facebook Group

Connect with others over social media who are affected by hereditary cancer.

Message Boards

Register for our forum where you can discuss topics online 24/7 with other people who face similar hereditary cancer concerns.

Helpline

Ask questions and receive nonjudgmental support and resources in English and Spanish. A Genetic Counselor helpline is also available.

Decision Checklists and Tip Sheets

Use our interactive tool to create personalized lists of questions to ask your doctors and tips to prepare for surgeries and procedures.

Find Healthcare Providers

Locate services or medical experts knowledgeable in cancer genetics, including genetic counselors, oncologists, surgeons, fertility experts and more.

Volunteer

Get involved by supporting others, advocating for laws and research that benefit our community and raising awareness of hereditary cancer on social media.

Insurance & Reimbursement

Learn about health insurance coverage and reimbursement for healthcare services. Get tips on insurance appeals and customizable sample appeal letters.

Financial Assistance

Find national resources and grant programs to help offset costs for genetic services, cancer screenings, surgeries, treatments and more.

Federal Laws

Learn about laws and legal protections affecting the hereditary cancer community—ACA, GINA, WHCRA—and how to file a grievance or complaint.

Federal Policy Efforts

Read about federal laws and legal protections affecting the hereditary cancer community and how to file a grievance or complaint.

Advocacy Day

Learn about Advocacy Day and how you can help educate Congress about important issues faced by people in the hereditary cancer community.

State Laws

Get information on state laws that guide coverage and costs of cancer screenings and diagnostic imaging needed by those at risk of hereditary cancers.

State Policy Efforts

Read about our engagement in key state legislative efforts, ensuring that the voice of the high-risk, hereditary cancer community is represented.

Volunteer

You can make a difference! Learn how you can help FORCE advocate for the hereditary cancer community at the state and federal levels.

Close menu

Behind the Headlines (XRAY)

Our XRAY program takes you behind the headlines to bring you reliable information about cancer research-related news and information.

Blog

Education and personal perspectives on topics of interest to our community.

Glossary

Find definitions for commonly used terms.

Brochures

Order or download our educational materials.

Webinars

Our live and on demand webinars feature presentations by experts on topics of interest and importance to our community.

Previvors

Information and resources that address the unique needs of the previvor community.

LGBTQIA+

Information and resources for people who identify with the LGBTQIA+ community and who have an inherited mutation linked to cancer.

Lynch Syndrome

Learn about Lynch syndrome and find information, resources and research specifically for the Lynch syndrome community.

En Español

¿El cáncer en su familia es hereditario? Aprenda sobre la prueba genética para identificar el riego de cáncer hereditario y los pasos a seguir para proteger su salud y la de su familia

FORCE Partners

Learn about organizations we work with to advocate for greater awareness, broader access to care, and better treatment and prevention options for all those who are impacted by hereditary cancer.

For Healthcare Providers

Information and resources for members of the healthcare or research community who focus on hereditary cancers.

For Researchers

Tips and tools to help investigators work with patient stakeholders to strengthen and accelerate their research.

Results for BIA-ALCL

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Women's Health & Cancer Rights Act (WHRCA) - BIA-ALCL

This webpage provides a brief overview of breast implant-associated anaplastic large cell lymphoma (BIA-ALCL) and coverage of related surgery and treatment.

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