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Interview about Hispanic/Latino Community Experiences Accessing Genetic Testing for Hereditary Cancer Risk
Surveys, Registries, Interviews
Hispanic/Latino people with a personal diagnosis of cancer or a family history of cancer
Study Contact Information:
Amanda Gutierrez, ag3@bcm.edu
Interview Study about Hispanic/Latino Community Experiences Accessing Genetic Testing for Hereditary Cancer Risk
About the Study
This study is looking at how to improve access to genetic testing for risk among Hispanic/Latino populations. We are conducting interviews with people in the Hispanic/Latino community across the U.S. who have received genetic testing for risk through a health provider, or who haven’t received genetic testing but have a family history of and/or cancer diagnosis. This study could help develop policy options to inform how to improve access to genetic testing for risk.
What the Study Involves
Participants will engage in a 1-hour virtual interview (telephone or videoconference) about their experiences and complete a short online survey. Email Amanda Gutierrez at ag3@bcm.edu if you are interested in participating or have questions about the study.
Lead Researchers
- Amanda Gutierrez, MPH
- Baylor College of Medicine Center for Medical Ethics and Health Policy
- Arizona State University School for the Future of Innovation in Society Consortium for Science, Policy, & Outcomes
- Amy McGuire, JD, PhD
- Baylor College of Medicine Center for Medical Ethics and Health Policy
- Robert Cook-Deegan, MD
- Arizona State University School for the Future of Innovation in Society Consortium for Science, Policy, & Outcomes
- Arizona State University School for the Future of Innovation in Society Consortium for Science, Policy, & Outcomes
People can participate if they:
- Are 18 years of age or older
- Identify as Hispanic or Latino,
- Speak English or Spanish, AND
- Have EITHER:
- Had genetic testing for risk through a health provider, OR
- Not had genetic testing for risk but have a:
- Cancer diagnosis and/or
- Family history of cancer
People cannot participate if they:
- Are under 18 years of age
- Do not identify as Hispanic or Latino
- Do not speak English or Spanish
- Have not had genetic testing for risk through a health provider AND also do not have a family history of or a cancer diagnosis