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Interview about Hispanic/Latino Community Experiences Accessing Genetic Testing for Hereditary Cancer Risk

Interview about Hispanic/Latino Community Experiences Accessing Genetic Testing for Hereditary Cancer Risk

Surveys, Registries, Interviews
Hispanic/Latino people with a personal diagnosis of cancer or a family history of cancer

Study Contact Information:

Amanda Gutierrez, ag3@bcm.edu


Interview Study about Hispanic/Latino Community Experiences Accessing Genetic Testing for Hereditary Cancer Risk

About the Study

This study is looking at how to improve access to genetic testing for risk among Hispanic/Latino populations. We are conducting interviews with people in the Hispanic/Latino community across the U.S. who have received genetic testing for  risk through a health provider, or who haven’t received genetic testing but have a family history of  and/or cancer diagnosis. This study could help develop policy options to inform how to improve access to genetic testing for  risk.

What the Study Involves

Participants will engage in a 1-hour virtual interview (telephone or videoconference) about their experiences and complete a short online survey. Email Amanda Gutierrez at ag3@bcm.edu if you are interested in participating or have questions about the study.

Lead Researchers

  • Amanda Gutierrez, MPH
    • Baylor College of Medicine Center for Medical Ethics and Health Policy
    • Arizona State University School for the Future of Innovation in Society Consortium for Science, Policy, & Outcomes
  • Amy McGuire, JD, PhD
    • Baylor College of Medicine Center for Medical Ethics and Health Policy
  • Robert Cook-Deegan, MD
    • Arizona State University School for the Future of Innovation in Society Consortium for Science, Policy, & Outcomes
This Study is Open To:

People can participate if they: 

  • Are 18 years of age or older
  • Identify as Hispanic or Latino,
  • Speak English or Spanish, AND
  • Have EITHER:
    • Had genetic testing for risk through a health provider, OR
    • Not had genetic testing for risk but have a:
      • Cancer diagnosis and/or
      • Family history of cancer
This Study is Not Open To:

People cannot participate if they: 

  • Are under 18 years of age
  • Do not identify as Hispanic or Latino
  • Do not speak English or Spanish
  • Have not had genetic testing for risk through a health provider AND also do not have a family history of or a cancer diagnosis