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Investigating BRCA Previvors’ Utilization of Social Media for Health Decision Making and Social Support

Investigating BRCA Previvors’ Utilization of Social Media for Health Decision Making and Social Support

Surveys, Registries, Interviews
Women with a BRCA1 or BRCA2 mutation who have never had cancer

Study Contact Information:

PI: Mariah L Wellman, by email: mariah.wellman@utah.edu


Investigating BRCA Previvors’ Utilization of Social Media for Health Decision Making and Social Support

About the Study

This study investigates why women share aspects of their previvorship identity on social media platforms. We are interviewing women above 18 years old, who carry known pathogenic variants in or , and share their previvor journey on social media platforms like Instagram, Facebook, Twitter, and TikTok at least once every other week. We are conducting anonymous interviews over Zoom with women who qualify. If you are interested, contact Mariah Wellman at mariah.wellman@utah.edu.
 

What the Study Entails

After reaching out to the Principle Investigator, they will check previvor’s eligbility including verifying the previvor has not yet been diagnosed with cancer and posts frequently on at least on social media platform. Women who qualify will be asked to schedule an anonymous interview in March or April lasting no longer than 45 minutes and conducted via Zoom. Participants who complete their interview will receive a $50 Amazon gift card as compensation for their time.
 

Lead Researchers/Study PIs and Affiliation

PI: Mariah L Wellman, University of Utah

This Study is Open To:

Participants must identify as a woman over the age of 18 who has diagnosed pathogenic variants in or and shares their previvor journey on social media platforms like Instagram, Facebook, Twitter, and TikTok at least once every other week. They must also consume social media content on a weekly basis. Eligible participants must have not been diagnosed with hereditary breast or ovarian cancer.

This Study is Not Open To:

Individuals cannot participate if they have been diagnosed with hereditary breast or ovarian cancer. They also cannot participate if they do not share about previvorship on their personal social media accounts.