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FORCE trains patients who are new to science to use their personal experiences to help guide hereditary cancer research.
FORCE trains patients who are new to science to use their personal experiences to help guide hereditary cancer research.
Examples of patient-friendly language for study descriptions
|
Instead of this term |
Consider using this term |
|
Adverse event |
Side effect or harmful effect |
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Agent |
Drug |
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Cohort |
Group or sub-group |
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Comorbidity |
Other illnesses or diseases patients may have |
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Familial cancer |
Hereditary cancer or cancer that runs in the family |
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Germline mutation |
Inherited mutation |
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Identify |
Look for |
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Intervention |
Treatment/Tool/Test |
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Mutation carrier |
Person with an inherited mutation |
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Pathogenic variant |
Mutation |
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Patients who failed treatment |
Patients whose cancer got worse or returned during or after treatment |
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Progression free survival |
The amount of time before a patient’s cancer grows or gets worse |
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Somatic mutation |
Tumor mutation or acquired mutation |
|
Subjects |
Participants |
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Treatment arm |
Group receiving treatment |
|
Trial |
Study |