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Interviews with Young Women with a BRCA Mutation About Their Breast Cancer Risk Management Experiences

Surveys, Registries, Interviews
Young women with a BRCA mutation

Study Contact Information:

Study Coordinator: Kerstin Kalke, Communication Studies, Northwestern University

Please reach out to [email protected] or contact us by phone at (847) 886-9956 if you are interested in participating in this study


Interviews with Young Women with a BRCA Mutation About Their Breast Cancer Risk Management Experiences

About the Study

This research study focuses on the experience of young women who found out that they have a or genetic mutation. We are particularly interested in young women’s emotional experiences when considering or engaging in strategies to manage increased breast cancer risk, (e.g., pills, regular screenings, or risk-reducing surgeries). Eligible participants will be asked to complete a consent form and a brief survey, and to participate in a 1-hour Zoom interview with the camera on. Participants will receive a $30 Amazon gift card in appreciation for their time.

What the Study Involves

Participants enrolled in this study will need to do the following:

  • Fill out a survey to determine eligibility (5 minutes)
  • Sign an online consent form and fill out a brief survey (5 minutes)
  • Participate in a 1-hour interview on Zoom (with the camera on)
  • Receive a $30 Amazon gift card in appreciation of their time

Lead Researcher

Dr. Courtney L. Scherr, Communication Studies, Northwestern University

This Study is Open To:

Our eligibility criteria include:

  • being female
  • being between 18-35 years of age
  • reside in the United States
  • have never been diagnosed with breast or ovarian cancer
  • have received genetic testing results that indicate a mutation on a gene ( and/or )
This Study is Not Open To:

People who:

  • are not female
  • are under 18 or over 35 years of age
  • do not reside in the United States
  • have been diagnosed with breast or ovarian cancer
  • do not have genetic testing results that indicate a mutation on a gene ( and/or )