Interviews with Young Women with a BRCA Mutation About Their Breast Cancer Risk Management Experiences

Surveys, Registries, Interviews
Young women with a BRCA mutation

Study Contact Information:

Study Coordinator: Kerstin Kalke, Communication Studies, Northwestern University

Please reach out to [email protected] or contact us by phone at (847) 886-9956 if you are interested in participating in this study

About the Study

This research study focuses on the experience of young women who found out that they have a BRCA1 or BRCA2 genetic mutation. We are particularly interested in young women’s emotional experiences when considering or engaging in strategies to manage increased breast cancer risk, (e.g., chemoprevention pills, regular screenings, or risk-reducing surgeries). Eligible participants will be asked to complete a consent form and a brief survey, and to participate in a 1-hour Zoom interview with the camera on. Participants will receive a $30 Amazon gift card in appreciation for their time.

What the Study Involves

Participants enrolled in this study will need to do the following:

Lead Researcher

Dr. Courtney L. Scherr, Communication Studies, Northwestern University

This Study is Open To:

Our eligibility criteria include:

This Study is Not Open To:

People who:


FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.