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Advocacy

FORCE advocates for families facing hereditary breast and ovarian cancer in areas such as access to care, research funding, insurance, and privacy.

Advocacy > Introduction to Advocacy

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Newsflash

9/14/17
FORCE reps were in St. Louis today for an ICER hearing on the value and cost of PARP inhibitors for ovarian cancer patients.

9/13/17
Advocates took part in the Rally for Medical Research Capitol Hill Day Training, preparing them to advocate for increased NIH research funding.

9/13/17
FORCE participated in the Blueprint for Breakthroughs: Charting the Course for Precision Medicine workshop, providing the perspective of the patient community.

8/9/17
Today, FORCE submitted comments to ICER expressing concerns about its draft report “Poly ADP-ribose polymerase (PARP) Inhibitors for Ovarian Cancer: Effectiveness and Value.”

7/25/17
A FORCE rep spoke today about effectively working with patient groups at the 13th annual Medical Device Coverage & Reimbursement conference.

7/11/17
We joined 133 orgs in supporting the I Am Essential coalition letter in response to the HHS RFI on how to "create a more flexible, streamlined approach to the regulatory structure of the individual and small group markets."

6/15/17
Lisa Schlager, FORCE VP of Community Affairs & Public Policy, attended the NCCN Policy Summit on Ensuring Patient Safety and Access in Cancer Care.
Summit Overview

6/12/17
FORCE joined 60 other orgs in a letter to the FDA with comments on the proposed Office of Patient Affairs.
Read comments...

5/23/17
FORCE joined The Ad Hoc Group for Medical Research, representing over 300 organizations, in recommending a $2 billion FY18 increase for NIH, in addition to funds included in the 21st Century Cures Act for targeted initiatives.

 

What is Advocacy?


FORCE is a wealth of information and support for families with hereditary cancer. My hereditary cancer journey - and that of my previvor daughter - has been so much easier because of FORCE.

Susan Davis, FORCE Outreach Coordinator and Hereditary Breast Cancer Survivor

Introduction to Advocacy

Advocacy is a top priority for FORCE. The term “advocacy” encompasses a broad range of activities that can improve outcomes for a person or group of people. Health advocacy refers to work done by an organization to improve access to information and care, regulatory oversight, or research for a specific disease or population. FORCE works with a broad range of stakeholders to improve the lives of people affected by hereditary cancer.

Legislative & Regulatory

Federal and state laws, regulations, and guidelines affect the health information and care that people receive, including the types of screening, prevention, and treatment that health insurance plans must cover, which lab tests or medications are available, and what screening services doctors should discuss with patients. FORCE initiates new or revised policies, weighs in as laws and regulations are interpreted, and fights policies that aren’t in the best interest of the hereditary cancer community.

Research

In the past, the only role for patients and non-scientists in the research process was as research study participants. The paradigm is shifting. Increasingly, the value of including input from the patient community is recognized. FORCE plays a part in shaping research and recruiting for studies that are pertinent to the hereditary cancer community. FORCE also trains members of the hereditary cancer community to engage in research advocacy.

Visit Current Issues to learn more about some of our recent advocacy work on behalf of the hereditary cancer community.

 

FORCE:Facing Our Risk of Cancer Empowered