Advocacy

FORCE advocates for families facing hereditary breast and ovarian cancer in areas such as access to care, research funding, insurance, and privacy.

Advocacy > Introduction to Advocacy

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Newsflash

6/1/2018
FORCE staff are attending the American Society of Clinical Oncology (ASCO) annual meeting in Chicago.

5/9/18
We joined 80 patient advocacy, medical, and industry orgs in urging Congress to enact legislation to modernize FDA oversight of clinical laboratory diagnostics. Read letter...

5/8/2018
FORCE, along with over 100 other organizations, is advocating for continued funding of DoD research programs. Read our letters to Senate and House leaders.

4/17/18
FORCE and over 100 patient and professional health orgs reached out to Congressional leaders to oppose expansion of short-term health insurance plans. Read letter...

4/12/18
FDA finalizes guidances to accelerate development of reliable, beneficial next generation sequencing-based tests. Read press release...

4/9/2018
FORCE joined other organizations in urging Utah to clarify and protect coverage of breast reconstruction after cancer for its Medicaid recipients. Read more...

What is Advocacy?

FORCE is a wealth of information and support for families with hereditary cancer. My hereditary cancer journey - and that of my previvor daughter - has been so much easier because of FORCE.

Susan Davis, FORCE Outreach Coordinator and Hereditary Breast Cancer Survivor

Introduction to Advocacy

Advocacy is a top priority for FORCE. The term “advocacy” encompasses a broad range of activities that can improve outcomes for a person or group of people. Health advocacy refers to work done by an organization to improve access to information and care, regulatory oversight, or research for a specific disease or population. FORCE works with a broad range of stakeholders to improve the lives of people affected by hereditary cancer.

Legislative & Regulatory

Federal and state laws, regulations, and guidelines affect the health information and care that people receive, including the types of screening, prevention, and treatment that health insurance plans must cover, which lab tests or medications are available, and what screening services doctors should discuss with patients. FORCE initiates new or revised policies, weighs in as laws and regulations are interpreted, and fights policies that aren’t in the best interest of the hereditary cancer community.

Research

In the past, the only role for patients and non-scientists in the research process was as research study participants. The paradigm is shifting. Increasingly, the value of including input from the patient community is recognized. FORCE plays a part in shaping research and recruiting for studies that are pertinent to the hereditary cancer community. FORCE also trains members of the hereditary cancer community to engage in research advocacy.

Visit Current Issues to learn more about some of our recent advocacy work on behalf of the hereditary cancer community.

 

FORCE:Facing Our Risk of Cancer Empowered