LGBTQ patients recommend improvements for their cancer care
https://www.facingourrisk.org/XRAY/LGBTQ-patient-recommendations-for-cancer-care
Full article: https://link.springer.com/article/10.1007%2Fs00520-018-4535-0
Very little research has focused on the cancer care experiences of lesbian, gay, bisexual, transgender and queer (LGBTQ) people. This study looks at recommendations from the LGBTQ community for improving their cancer care. (6/20/19)
Expert Guidelines
The University of California Center for Excellence in Transgender Health published the second edition of Guidelines for the Primary and Gender-Affirming Care of Transgender and Gender Nonbinary People, which include the following recommendations for cancer screening and treatment:
- For transgender women, breast cancer screening beginning 5-10 years after the use of feminizing hormones.
- For transgender men who have not had mastectomy or who had breast reduction rather than mastectomy, routine breast cancer screening based on personal and/or family history.
- Genetic counseling and/or testing if there is a known mutation in a BRCA or other gene that increases cancer risk or if the patient has a personal or family history of cancer that meets national guidelines for genetic counseling and testing.
- Screening for other cancers (e.g., cervical, endometrial, prostate, etc.) should be based on an individual’s personal and/or family history of cancer.
Questions To Ask Your Health Care Provider
- Do you have experience working with LBTGQ patients?
- What support networks are available to individuals who have my orientation or concerns?
Open Clinical Trials
The following studies are enrolling people from the LGBTQ+ community.
- PRIDE Study: The PRIDE Study is the first long-term national health study of LGBTQ+ people. The goal is to improve the long-term health and wellness of LGBTQ+ people.
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NCT05845476: Sexual Orientation and Gender Identity (SOGI) Data Collection Program Implementation and Evaluation (SOGI). The overall goal of this proposal is to assess multi-level barriers associated with sexual orientation and gender identity (SOGI) data collection in the health record as well as implementation factors including feasibility, acceptability, and data completeness.
Visit our Featured Research Page and Research Search and Enroll Tool to find additional studies enrolling people with, or at high risk for cancer. Note: Most of these trials are geared towards cisgender people.
About FORCE
FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.