LGBTQ patients recommend improvements for their cancer care
Full article: https://link.springer.com/article/10.1007%2Fs00520-018-4535-0
Little is known about the cancer care experiences of lesbian, gay, bisexual, transgender and queer (LGBTQ) patients. This study looks at recommendations from the LGBTQ community for improving their cancer care. (6/20/19)
Current recommendation for cancer screening in transgender people
In June 2016, the University of California Center for Excellence in Transgender Health published the second edition of Guidelines for the Primary and Gender-Affirming Care of Transgender and Gender Nonbinary People, which include the following guidelines for cancer screening and treatment:
- For transgender women, breast cancer screening beginning 5-10 years after use of feminizing hormones.
- For transgender men who have not had mastectomy or who had breast reduction rather than mastectomy, routine breast cancer screening based on personal and/or family history.
- Genetic counseling and/or testing if there is a known mutation in BRCA or other gene that increases breast cancer risk, or if the patient has a personal or family history of cancer that meets national guidelines for genetic counseling and testing.
- Screening for other cancers (e.g. cervical, endometrial, prostate, etc.) should be based on an individual’s personal and/or family history of cancer.
Both the New York Times article and the guidelines emphasize the need for health care providers to assure that the medical system is treating transgender patients with appropriate care.
Questions To Ask Your Health Care Provider
- Do you have experience working with LBTGQ patients?
- What support networks are available to individuals who have my orientation or concerns?
Open Clinical Trials
The following are clinical trial for cancer studies that are specifically recruiting LGBTQ patients:
The Clinical trial (NCT02459769) Exercise Intervention for LGBT Cancer Survivors is recruiting lesbian, gay, bisexual, and transgender (LGBT) cancer survivors to evaluate an exercise intervention and its impact on psychological stress for cancer patients and their caregivers.
- The RESTORE clinical trial (NCT03343093) focuses on improving sexual outcomes of gay and bisexual prostate cancer survivors by increasing the evidence base for rehabilitation.
- The Pride Study is being conducted by doctors and research scientists at Stanford University and the University of California, San Francisco. It is the first large-scale, long-term national health study of people who identify as lesbian, gay, bisexual, transgender, queer (LGBTQ), or another sexual or gender minority. The goal of The PRIDE Study is to improve the health of LGBTQ people.
FORCE is a national nonprofit organization, established in 1999. Our mission is to improve the lives of individuals and families affected by adult hereditary cancers.